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Ethics and Intellectual Property
|
Who owns the data you will be using, creating or collecting?
|
Institutions (XJTLU/UoL)
|
dbfc860babb2ada5fbff06df6fe93eb8
|
dmponline.dcc.ac.uk
|
Ethics and Intellectual Property
|
If there are, how do you propose to deal with them?
|
According to regulatory requirements, apply for implementation in accordance with regulations
|
dbfc860babb2ada5fbff06df6fe93eb8
|
dmponline.dcc.ac.uk
|
Storage and Organisation
|
If you are not using UoL managed drives, where will you be storing your research data and what are your reasons fordoing this?
|
PC Easy to access.
|
dbfc860babb2ada5fbff06df6fe93eb8
|
dmponline.dcc.ac.uk
|
Storage and Organisation
|
Are there any security issues relating to the storage of the data.
|
Basic storage conditions.
|
dbfc860babb2ada5fbff06df6fe93eb8
|
dmponline.dcc.ac.uk
|
Storage and Organisation
|
Who else will have access to this data during the project?
|
Supervisor, Data reviewers.
|
dbfc860babb2ada5fbff06df6fe93eb8
|
dmponline.dcc.ac.uk
|
Data Sharing
|
Will you be able to share any of your data?
|
It would be able to share to my supervisor and data reviewers.
|
dbfc860babb2ada5fbff06df6fe93eb8
|
dmponline.dcc.ac.uk
|
Data Sharing
|
How do you plan to share your data? Will it be 'open'?
|
It will be saved in the relevant database of the institution for reference. It would be open by following the institution's rule.
|
dbfc860babb2ada5fbff06df6fe93eb8
|
dmponline.dcc.ac.uk
|
Data Sharing
|
If not 'open' who could have access to your data?
|
Project related personnel and auditors.
|
dbfc860babb2ada5fbff06df6fe93eb8
|
dmponline.dcc.ac.uk
|
Long term archiving
|
Which data will you be able to retain in the long term?
|
Cell research data. Chemical structure and data.
|
dbfc860babb2ada5fbff06df6fe93eb8
|
dmponline.dcc.ac.uk
|
Long term archiving
|
Where will the data be archived at the end of the project and how long will it be retained?
|
PC. Till the PhD's end
|
dbfc860babb2ada5fbff06df6fe93eb8
|
dmponline.dcc.ac.uk
|
Long term archiving
|
What formats do you anticipate the data will be archived in?
|
Text file
|
dbfc860babb2ada5fbff06df6fe93eb8
|
dmponline.dcc.ac.uk
|
Implementation
|
How often will this plan be reviewed?
|
Once per year
|
dbfc860babb2ada5fbff06df6fe93eb8
|
dmponline.dcc.ac.uk
|
Implementation
|
What training is needed to implement this plan?
|
Training related to biological and chemical experiments
|
dbfc860babb2ada5fbff06df6fe93eb8
|
dmponline.dcc.ac.uk
|
Implementation
|
What further information or help is required to implement this plan?
|
Standardized technical support
|
dbfc860babb2ada5fbff06df6fe93eb8
|
dmponline.dcc.ac.uk
|
Data Collection
|
What data will you collect or create?
|
Datos observacionales tabulados acerca de la presencia o ausencia y tipo de artefactos en CBCT. Volúmenes DICOM de modelos examinados con CBCT.
|
e8618c8aa641524a9ffa7240f750389e
|
dmponline.dcc.ac.uk
|
Data Collection
|
How will the data be collected or created?
|
Formulario adhoc creado en Google Docs. Volumen DICOM tomado mediante CBCT Sirona SL.
|
e8618c8aa641524a9ffa7240f750389e
|
dmponline.dcc.ac.uk
|
Documentation and Metadata
|
What documentation and metadata will accompany the data?
|
Libro de códigos.
|
e8618c8aa641524a9ffa7240f750389e
|
dmponline.dcc.ac.uk
|
Ethics and Legal Compliance
|
How will you manage any ethical issues?
|
Se utilizarán dientes extraídos y disponibles para investigación del Banco de Dientes del Instituto de Odontoestomatología de la UACh.
|
e8618c8aa641524a9ffa7240f750389e
|
dmponline.dcc.ac.uk
|
Ethics and Legal Compliance
|
How will you manage copyright and Intellectual Property Rights (IPR) issues?
|
Los datos serán de propiedad de los investigadores y serán publicados con licencia Licencia Creative Commons Atribución- NoComercial-CompartirIgual 4.0 Internacional .
|
e8618c8aa641524a9ffa7240f750389e
|
dmponline.dcc.ac.uk
|
Storage and Backup
|
How will the data be stored and backed up during the research?
|
Los datos serán almacenados en un servidor virtual GDRive al que tendrán acceso bajo clave los investigadores. El responsable será el investigador principal. Se almacenará una copia local en el PC del investigador principal.
|
e8618c8aa641524a9ffa7240f750389e
|
dmponline.dcc.ac.uk
|
Storage and Backup
|
How will you manage access and security?
|
Solo los investigadores tendrán acceso a los datos durante la investigación, mediante sus claves personales. Posteriormente, serán publicados en un servidor de la Open Science Foundation (OSF.IO)
|
e8618c8aa641524a9ffa7240f750389e
|
dmponline.dcc.ac.uk
|
Selection and Preservation
|
Which data are of long-term value and should be retained, shared, and/or preserved?
|
Se almacenarán los volúmenes en formato DICOM, las respuestas en formato CSV y los scripts de análisis en formato rmarkdown.
|
e8618c8aa641524a9ffa7240f750389e
|
dmponline.dcc.ac.uk
|
Selection and Preservation
|
What is the long-term preservation plan for the dataset?
|
Los datos generados se preservarán por a lo menos cinco años, posteriormente el IP guardará una copia de respaldo comprimida. Los datos serán publicados en el servidor de la OSF.IO
|
e8618c8aa641524a9ffa7240f750389e
|
dmponline.dcc.ac.uk
|
Data Sharing
|
How will you share the data?
|
Una vez publicados los resultados, el dataset original junto con los scripts de análisis serán publicados y compartidos en el servidor de la OSF.IO bajo Licencia Creative Commons Atribución-NoComercial-CompartirIgual 4.0 Internacional .
|
e8618c8aa641524a9ffa7240f750389e
|
dmponline.dcc.ac.uk
|
Data Sharing
|
Are any restrictions on data sharing required?
|
Aquellos estipulados en Licencia Creative Commons Atribución-NoComercial-CompartirIgual 4.0 Internacional: compartir igual y sin obras comerciales.
|
e8618c8aa641524a9ffa7240f750389e
|
dmponline.dcc.ac.uk
|
Responsibilities and Resources
|
Who will be responsible for data management?
|
El responsable del plan de manejo de datos es el investigador principal, Prof Sergio Uribe, [email protected]
|
e8618c8aa641524a9ffa7240f750389e
|
dmponline.dcc.ac.uk
|
Responsibilities and Resources
|
What resources will you require to deliver your plan?
|
Servidores GDrive y OSF.IO
|
e8618c8aa641524a9ffa7240f750389e
|
dmponline.dcc.ac.uk
|
Project Summary
|
Provide a brief description of the project and the research being carried out. State if the research is part of a largerproject, if there are any funders involved, and how data fits in.
|
This method statement covers the work to be undertaken to the west of Kings Weston Roman Villa outside the scheduled area, between May 28th and 5th 2024 by Alexander Birkett, the Specialist Teaching Technician and Students from at the Department of Anthropology and Archaeology, University of Bristol. The aim is to identify potential ancillary buildings to the Roman Villa excavated by George Boon in 1947, and currently managed by the Bristol City Museum and Art Gallery. The results would add to the current understanding of the site and the Roman villas in region and provide educational opportunities to both higher education students as well as students and members of the public from the local area. The two methods employed will be Electrical Tomographic Resistance (Resistivity) using a Geoscan RM15-D resistivity meter, on a PA20 frame with an MPX15 multiplexer. This instrument uses an electrical current to This instrument uses an electrical current to penetrate the subsurface, with the resistance measured by electrodes to detect variations in the soil composition. These variations can indicate the presence of archaeological features such as walls, voids, and ditches. A Ground Penetrating Radar (GPR) using a MALÅ Ground Explorer GX with the GX450 HDR Antenna (450Mhz) will also be used. This instrument uses high powered emitting electromagnetic pulses into the ground and recording the reflections of these pulses caused by changes in the subsurface materials. This can be used to identify buried features such as stone or masonry walls, ditches, and hard surfaces. The use of Gradiometry (Magnetometry) has been discounted due to the large number of metallic objects on the surface, the metal fence, sign post, and near-by cars and lampposts in the area.
|
fff5da8c4a66a995f0549e8f7e3f8a31
|
dmponline.dcc.ac.uk
|
Data Types
|
What types of data will be involved?
|
Geophysics data working files preservation files image files Project material project notes project report Project documentation geophysics metadata geophysics georeferencing project metadata file description
|
fff5da8c4a66a995f0549e8f7e3f8a31
|
dmponline.dcc.ac.uk
|
Data Types
|
What file formats will be used?
|
Geophysics data working files .shp; .xyz; .tiff preservation files .shp; .xyz; .tiff image files .tiff Project material project notes .PDF/A project report .PDF/A Project documentation geophysics metadata .csv geophysics georeferencing .shp project metadata .csv, file description .txt
|
fff5da8c4a66a995f0549e8f7e3f8a31
|
dmponline.dcc.ac.uk
|
Data Types
|
What will be the approximate size of the files?
|
Around 100 MB
|
fff5da8c4a66a995f0549e8f7e3f8a31
|
dmponline.dcc.ac.uk
|
Data Storage and Preservation
|
How will the data be backed up?
|
Data prior to processing will be stored on University of Bristol SharePoint servers with one off-site backup of all data. All processed data will be stored in The University of Bristol Research Data Storage Facility (RDSF), which provides secure, long-term storage for research data. This major investment provides nightly backup of all data, with further resilience provided by three geographically distinct storage locations. A tape library is used for backup purposes and also for long-term, offline data storage. Only authorised users can access data stored within the RDSF. The RDSF is managed by Bristol’s Advanced Computing Research Centre (ACRC) which has a dedicated steering group and a rigorous data storage policy (https://www.acrc.bris.ac.uk/acrc/RDSF_policy.pdf). The RDSF upholds and reinforces Bristol’s wider Information Security Policy(www.bris.ac.uk/infosec/policies/docs/isp-01.pdf).
|
fff5da8c4a66a995f0549e8f7e3f8a31
|
dmponline.dcc.ac.uk
|
Data Storage and Preservation
|
Do you have security procedures in place for sensitive data?
|
No personal data is captured.
|
fff5da8c4a66a995f0549e8f7e3f8a31
|
dmponline.dcc.ac.uk
|
Data Storage and Preservation
|
What are your plans for long-term storage of the data?
|
Data will be stored with the University of Bristol's Research Data Repository (data.bris) will preserve research data for a minimum of 20 years. The report will be submitted to the local HER via email and OASIS V record. Any additional report data will be made available upon request.
|
fff5da8c4a66a995f0549e8f7e3f8a31
|
dmponline.dcc.ac.uk
|
Data Organisation
|
How will data be organised?
|
Data will be stored, recorded, and organised according to the best practices outlined by the Archaeology Data Service (ADS) for the storage and archiving of Geophysical Survey data. Geophysics data working files preservation files image files Project material project notes project report Project documentation geophysics metadata geophysics georeferencing project metadata file description
|
fff5da8c4a66a995f0549e8f7e3f8a31
|
dmponline.dcc.ac.uk
|
Data Documentation and Description
|
What documentation will you keep?
|
Data will be stored, recorded, and organised according to the best practices outlined by the Archaeology Data Service (ADS) for the storage and archiving of Geophysical Survey data.
|
fff5da8c4a66a995f0549e8f7e3f8a31
|
dmponline.dcc.ac.uk
|
Data Documentation and Description
|
Will you be using any metadata standards?
|
Data will be stored, recorded, and organised according to the best practices outlined by the Archaeology Data Service (ADS) for the storage and archiving of Geophysical Survey data.
|
fff5da8c4a66a995f0549e8f7e3f8a31
|
dmponline.dcc.ac.uk
|
Data Sharing and Publication
|
What data do you plan to share?
|
All processed and raw survey data will be made publicly available.
|
fff5da8c4a66a995f0549e8f7e3f8a31
|
dmponline.dcc.ac.uk
|
Data Sharing and Publication
|
Are there any ethical, commercial, legal or IPR issues which might apply when publishing your data?
|
There are no ethical, commercial, legal or IPR issues with publishing this data.
|
fff5da8c4a66a995f0549e8f7e3f8a31
|
dmponline.dcc.ac.uk
|
Data Sharing and Publication
|
How will your data be shared?
|
Data will be published through the University of Bristol Research Data Repository (data.bris). The data.bris Repository offers a means for Bristol’s researchers to openly share non-confidential research data, without the need for external data users to undergo any form of authentication. Each deposit is accompanied by appropriate metadata and is assigned a unique Digital Object Identifier (DOI) via the DataCite scheme. All data published by the Repository is available under a permissive re-use license.
|
fff5da8c4a66a995f0549e8f7e3f8a31
|
dmponline.dcc.ac.uk
|
Data Sharing and Publication
|
Will there need to be controlled access procedures in place for your data?
|
There is no need for controlled access procedures to be in place for this data.
|
fff5da8c4a66a995f0549e8f7e3f8a31
|
dmponline.dcc.ac.uk
|
1. General features
|
Please fill in the table below. When not applicable (yet), please fill in N/A.
|
DMP template version ABR number (only for human-related research) N/A METC number (only for human-related research) N/A DEC number (only for animal-related research) N/A Acronym/short study title PROBAST + AI Delphi Name Research Folder PROBAST_2.0 Name Division Julius Center Name Department Epidemiology Partner Organization UMC Utrecht Start date study 01.10.2022 Planned end date study 30.04.2023 Name of datamanager consulted* Evelien Kruisselbrink Check date by datamanager
|
5ce7ad65c8589e1ba43dded1161ab415
|
dmponline.dcc.ac.uk
|
2. Data Collection
|
Give a short description of the research data.
|
Data Capture Tool File Type Format Storage space Human 200 eCRF REDCap Quantitative .csv 0 - 10 GB Amendments (July 14,2022): After receiving comments of the PROBAST-AI Delphi round, we have extended the aim of our survey to now also capture experts' opinions on several improved statements to assess the risk of bias and applicability/appropriateness of prediction models (PROBAST). The updated PROBAST tool will be extended to include statements which assess the risk of bias and applicability/appropriateness of prediction models developed with machine learning/artificial intelligence techniques (AI-extension). The final product is the development of a risk of bias and applicability/appropriateness assessment tool, namely PROBAST 2.0 based on experts' consensus. We will reuse the data (comments) gathered through the first Delphi round of PROBAST-AI. Amendments (December 9th, 2022): The working title was changed to PROBAST + AI. Subjects Volume Data Source Data Capture Tool File Type Format Storage space Human 200 eCRF Castor Quantitative .csv 0 - 10 GB
|
5ce7ad65c8589e1ba43dded1161ab415
|
dmponline.dcc.ac.uk
|
2. Data Collection
|
Describe who will have access to which data during your study.
|
During data collection: The principal investigator will have access to identifying direct personal data because we will send personalised links to answer the survey (linking table: linking responses to participants). The principal investigator will be in charge of denying access to identify survey responses within REDCap (build-in features in REDCap). Therefore, other members of the research team will only have access to pseudoanonymized data to run analysis. Neither the principal investigator nor other members of the research team will have access to delete records of survey responses. Type of data Who has access Direct identifying personal data Principal investigator, Datamanager Table linking survey responses to participants Principal investigator, Datamanager Pseudonymized data Research Team Amendments (July 14, 2022): As recommended by the Data managers of the Julius Center, UMCU, we will switch the survey from REDCap to Castor for the PROBAST 2.0 Delphi survey. Amendments (December 9th, 2022): The working title of the project was changed from PROBAST 2.0 to PROBAST +AI.
|
5ce7ad65c8589e1ba43dded1161ab415
|
dmponline.dcc.ac.uk
|
2. Data Collection
|
Specify data management costs and how you plan to cover these costs.
|
Explanation. REDCap is available via UMC Utrecht, thus no license fee is required. Storage will be on UMC Utrecht server, thus no extra cost is necessary. Our data has no long-term value, thus we do not plan to archive it in repositories. # Type of costs Division ("overhead") Funder Other (specify) 1. Time of datamanager x 2. Design of eCRF Principal Investigator 3. Storage x Amendments (July 14, 2022): For the expanded PROBAST 2.0 Delphi survey, we will change from REDCap to Castor. Castor is available via UMC Utrecht, thus no license fee is required. Storage will remain on the UMC Utrecht server, thus no extra cost is necessary. Our data has no long-term value, thus we do not plan to archive it in repositories. Amendments (December 9th, 2022): The working title was changed from PROBAST 2.0 to PROBAST +AI.
|
5ce7ad65c8589e1ba43dded1161ab415
|
dmponline.dcc.ac.uk
|
2. Data Collection
|
State how ownership of the data and intellectual property rights (IPR) to the data will be managed, and whichagreements will be or are made.
|
UMC Utrecht is and remains the owner of all collected data for this study. Our data consist on survey responses of experts. IPR are not applicable, thus it does not need additional protection.
|
5ce7ad65c8589e1ba43dded1161ab415
|
dmponline.dcc.ac.uk
|
3. Personal data (Data Protection Impact Assessment (DPIA) light)
|
Will you be using personal data (direct or indirect identifying) from the Electronic Patient Dossier (EPD), DNA, bodymaterial, images or any other form of personal data?
|
I will process direct identifying personal data. I have checked the full DPIA checklist and I do not have to complete a full DPIA. I therefore fill out this DPIA light and proceed to 3.1
|
5ce7ad65c8589e1ba43dded1161ab415
|
dmponline.dcc.ac.uk
|
3. Personal data (Data Protection Impact Assessment (DPIA) light)
|
What legal right do you have to process personal data?
|
We extended an invitation to contact us if people were interested in participate in the development of PROBAST-AI by using academic publications and social media (Twitter). We will send a link to the survey to whom have previously contacted us. At the beginning of the survey, we will ask if they consent to participate in the study, after we have provided information regarding the purpose of the study and how their data will be handle. In addition, we ask them if they consent to be acknowledged by name in any potential academic publication. Also, we will ask them to invite other known experts to approach us, so we can send them an invitation, as well. In case any participants refuse to participate in the survey, they will not have access to the survey and their personal information (name, e-mail) will be delete. Amendment: We will notify participants which took part in the PROBAST-AI Delphi round 1 that we have expanded our aim to create a risk of bias tool that is now called PROBAST 2.0. Participants will have to give their consent to participate in this second round of the Delphi survey. Amendment (December 9th, 2022): The working title was changed from PROBAST 2.0 to PROBAST +AI.
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5ce7ad65c8589e1ba43dded1161ab415
|
dmponline.dcc.ac.uk
|
3. Personal data (Data Protection Impact Assessment (DPIA) light)
|
Describe how you manage your data to comply to the rights of study participants.
|
Right of Access A linking table to personal data will be only accessible to the principal investigator who can re-identify participants when necessary and deliver, correct, or delete the data. This file will be saved in a secure research folder within UMC server (C_PersonalData), only accessible to the principal investigator. Right of Rectification If a participant wants to rectified responses, the principal investigator can deliver a code to the participant to access her/his responses and rectified them. Right of Objection If an invitee to the survey refuses to participate, they can close the survey and her/his name and e-mail will be deleted from our database. Right to be forgotten We inform invitee that their participation is voluntary and that they can stop taking part in the research at any moment. Removal of collected data can be done by the principal investigator.
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5ce7ad65c8589e1ba43dded1161ab415
|
dmponline.dcc.ac.uk
|
3. Personal data (Data Protection Impact Assessment (DPIA) light)
|
Describe the tools and procedures that you use to ensure that only authorized persons have access to personaldata.
|
Name and e-mail address of participants will be stored in a secure folder (C_PersonalData). The principal investigator will be the only person with access to this information.
|
5ce7ad65c8589e1ba43dded1161ab415
|
dmponline.dcc.ac.uk
|
4. Data Storage and Backup
|
Describe where you will store your data and documentation during the research.
|
The digital files will be stored in the secured Research Folder Structure of the UMC Utrecht. All original raw data will be stored here and analyses will be done on working copies. We will need <1 GB storage space, so the capacity of the network drive will be sufficient. Documentation will be stored in the Research Folder Structure. While the survey is open to be answer, raw data will be store in REDCap. After the survey is closed, we will delete all raw data store in REDCap and exported to the UMC Research Folder Structure. We will make available within the main folder (PROBAST-AI) a 'readme' text file with the details about contributors, conditions for re- use, format, file types, and description of sub-folders structure. Amendments (July 14, 2022): With the expansion of the research project to develop the final product PROBAST 2.0, we are going to switch from REDCap to Castor. After the survey is closed, we will delete all raw data store in Castor and export it to the UMC Research Folder Structure. The main folder (previously PROBAST-AI) was renamed to PROBAST 2.0.
|
5ce7ad65c8589e1ba43dded1161ab415
|
dmponline.dcc.ac.uk
|
4. Data Storage and Backup
|
Describe your backup strategy or the automated backup strategy of your storage locations.
|
During data collection, automatic backups will be made in the Electronic Data Capture Tool REDCap. Upon completion of data collection, all data will be exported and saved in the Research Folder Structure where they are automatically backed up by the UMC Utrecht backup system. All data in REDCap will be deleted afterwards. Amendments (July 14, 2022): For PROBAST 2.0, the Electronic Data Capture Tool changed from REDCap to Castor. Upon completion of data collection, all data will be exported and saved in the Research Folder Structure where they are automatically backed up by the UMC Utrecht backup system. All data in Castor will be deleted afterwards. Amendment (December 9th, 2022): The working title was changed from PROBAST 2.0 to PROBAST +AI.
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5ce7ad65c8589e1ba43dded1161ab415
|
dmponline.dcc.ac.uk
|
5. Metadata and Documentation
|
Describe the metadata that you will collect and which standards you use.
|
We will make available a codebook with the data dictionary (survey questions, units of measurement, assumptions) for the raw data. This information is generated in REDCap while the survey is being created, so the file will be upload in the main folder (PROBAST-AI Delphi) after data collection. Alongside, another R script will be available with analyses and detailed methodology. Amendments (July 14, 2022): For PROBAST 2.0, we will switch from REDCap to Castor, as advised by the data management of the UMCU. The main folder was renamed to PROBAST 2.0. I will make a codebook available with the data dictionary (survey questions, units of measurement, assumptions) for the raw data. The information is generated in Castor while the survey is being created so the file will be uploaded in the main folder (PROBAST 2.0) after data collection. Alongside, another R script will be available with analyses and detailed methodology. Amendment (December 9th, 2022): The working title was changed from PROBAST 2.0 to PROBAST +AI.
|
5ce7ad65c8589e1ba43dded1161ab415
|
dmponline.dcc.ac.uk
|
5. Metadata and Documentation
|
Describe your version control and file naming standards.
|
We will distinguish versions by indicating the version in the filename of the master copy by adding a code after each edit, for example V1.1 (first number for major versions, last for minor versions). The most recent copy at the master location is always used as the source, and before any editing, this file is saved with the new version code in the filename. The file with the highest code number is the most recent version.
|
5ce7ad65c8589e1ba43dded1161ab415
|
dmponline.dcc.ac.uk
|
6. Data Analysis
|
Describe how you will make the data analysis procedure insightful for peers.
|
I have written an analysis plan in which I state why I will use which data and which statistical analysis we plan to do in which software. The analysis plan is stored in the project folder, so it is findable for my peers. The data will be processed using the statistical software R (R Core Team (2018). R: A language and environment for statistical computing. R Foundation for Statistical Computing, Vienna, Austria. https://www.R-project.org/). The scripts will contain comments, such that every step in the analysis is documented and peers can read why I made certain decisions during the analysis phase.
|
5ce7ad65c8589e1ba43dded1161ab415
|
dmponline.dcc.ac.uk
|
7. Data Preservation and Archiving
|
Describe which data and documents are needed to reproduce your findings.
|
The data package will contain: the study protocol describing the methods and materials, the raw data, the script to process the data, the scripts leading to tables and figures in the publication, a codebook with explanations on the variable names, and a ‘read_me.txt’ file with an overview of files included and their content and use.
|
5ce7ad65c8589e1ba43dded1161ab415
|
dmponline.dcc.ac.uk
|
7. Data Preservation and Archiving
|
Describe for how long the data and documents needed for reproducibility will be available.
|
Data and documentation needed to reproduce findings from this non-WMO study will be stored for at least 5 years.
|
5ce7ad65c8589e1ba43dded1161ab415
|
dmponline.dcc.ac.uk
|
7. Data Preservation and Archiving
|
Give the Persistent Identifier (PID) that you will use as a permanent link to your published dataset.
|
I will not make the dataset available in an external repository. Therefore, a PID is not necessary.
|
5ce7ad65c8589e1ba43dded1161ab415
|
dmponline.dcc.ac.uk
|
8. Data Sharing Statement
|
Describe what reuse of your research data you intend or foresee, and what audience will be interested in yourdata.
|
Members of the research team might be reusing all research data in the final dataset to generate new research questions. The raw data can be of interest for other researchers for verification of study results.
|
5ce7ad65c8589e1ba43dded1161ab415
|
dmponline.dcc.ac.uk
|
8. Data Sharing Statement
|
Describe which metadata will be available with the data and what methods or software tools are needed to reusethe data.
|
All data and documents in the data package mentioned in 7.1 will be shared under restrictions. This Data Management Plan, codebook of the data and scripts of analysis in R will also be available.
|
5ce7ad65c8589e1ba43dded1161ab415
|
dmponline.dcc.ac.uk
|
8. Data Sharing Statement
|
Describe when and for how long the (meta)data will be available for reuse
|
(Meta)data will be available as soon as related articles are published until 1 year after.
|
5ce7ad65c8589e1ba43dded1161ab415
|
dmponline.dcc.ac.uk
|
8. Data Sharing Statement
|
Describe where you will make your data findable and available to others.
|
We will inform potential users that our data is available within the publication of 'PROBAST-AI Statement' and 'PROBAST-AI Elaboration and Explanation' papers. Amendments (July 14, 2022): The project will be expanded and was renamed to PROBAST 2.0. Hence, the title of the publications will change. We will inform potential users that our data is available within the publication of 'PROBAST 2.0 Statement' and 'PROBAST 2.0 Elaboration and Explanation' papers. Amendment (December 9th, 2022): The working title was changed from PROBAST 2.0 to PROBAST +AI. Therefore, the publications of the main papers will be renamed to 'PROBAST + AI statement' and 'PROBAST +AI Explanation & Elaboration').
|
5ce7ad65c8589e1ba43dded1161ab415
|
dmponline.dcc.ac.uk
|
Administrativa projektuppgifter / Administrative project information
|
Projektnamn / Project name
|
Mixed Methods
|
dcce46e8dcc5364de92c6256c1f7a41c
|
dmponline.dcc.ac.uk
|
Administrativa projektuppgifter / Administrative project information
|
Huvudman / Head of project
|
Ola Hall, Lunds Universitet och Thorsteinn Rögnwaldsson Halmstad Högskola
|
dcce46e8dcc5364de92c6256c1f7a41c
|
dmponline.dcc.ac.uk
|
Administrativa projektuppgifter / Administrative project information
|
Medverkande organisationer / Participating organisations
|
Lunds University and Halmstad University.
|
dcce46e8dcc5364de92c6256c1f7a41c
|
dmponline.dcc.ac.uk
|
Administrativa projektuppgifter / Administrative project information
|
Primärforskare / Primary researcher
|
Ola Hall, Lunds University and Thorsteinn Rögnwaldsson Halmstad University Mattias Ohlsson Lunds University, Roger Carlsson och Hamid Sarmadi, Halmstad University.
|
dcce46e8dcc5364de92c6256c1f7a41c
|
dmponline.dcc.ac.uk
|
Administrativa projektuppgifter / Administrative project information
|
Kontaktperson / Contact person
|
Ola Hall, Lunds University
|
dcce46e8dcc5364de92c6256c1f7a41c
|
dmponline.dcc.ac.uk
|
Administrativa projektuppgifter / Administrative project information
|
Forskningsfinansiär / Research funder
|
Riksbankens Jubileumsfond, Sweden
|
dcce46e8dcc5364de92c6256c1f7a41c
|
dmponline.dcc.ac.uk
|
Administrativa projektuppgifter / Administrative project information
|
Projektbeskrivning / Project description
|
To investigate Demographic Health Surveys (DHS) points-data versus stellite images for given geographical corresponding areas in order to predict and evaluate wealth; given position data and images for both daylight and nighttime light.
|
dcce46e8dcc5364de92c6256c1f7a41c
|
dmponline.dcc.ac.uk
|
Dokumentation och datakvalitet / Documentation and data quality
|
Hur kommer materialet att dokumenteras och beskrivas med tillhörande metadata om struktur, standarder och formatför beskrivningar av innehållet, insamlingsmetod m.m.? / How will the material be documented and described withassociated meta data about structure, standards and format for describing the content, method of collection etc.?
|
Current data, source code and results will be locally stored in "Box" SUNET with version control. Datahandling and procedures are documented using UML with the program: Visual Paradigm as a .vpp file.
|
dcce46e8dcc5364de92c6256c1f7a41c
|
dmponline.dcc.ac.uk
|
Dokumentation och datakvalitet / Documentation and data quality
|
Hur kommer kvalitet hos data säkerställas och dokumenteras (till exempel repeterade mätningar, validering avdatainmatning, m.m.)? / How will the quality of data be controlled and documented (for example repeated samples ofmeasurements, validation of data collection etc.)?
|
The data stored is original data extracted and processed with own code.
|
dcce46e8dcc5364de92c6256c1f7a41c
|
dmponline.dcc.ac.uk
|
Rättsliga och etiska aspekter / Legal and ethical matters
|
Hur säkerställs att data hanteras enligt de rättsregler som gäller till exempel hantering av personuppgifter, sekretessoch immaterialrätt? / How do we ensure that data is handled in accordance with applicable legal rules that apply to,for example the handling of personal data, confidentiality and intellectual property rights?
|
Not applicable, all data is open.
|
dcce46e8dcc5364de92c6256c1f7a41c
|
dmponline.dcc.ac.uk
|
Tillgängliggörande och långtidsbevarande / Accessibility and long term preservation
|
På vilket sätt säkerställs långsiktigt bevarande och av vem? Hur kommer urval av data för långtidsbevarande attgöras? / In what way is long-term storage safeguarded, and by whom? How will the selection of data for long-termstorage be made?
|
The data is stored in SUNET as long as SUNET will.
|
dcce46e8dcc5364de92c6256c1f7a41c
|
dmponline.dcc.ac.uk
|
Tillgängliggörande och långtidsbevarande / Accessibility and long term preservation
|
Kommer det att krävas särskilda system, mjukvaror, källkod eller andra typer av tjänster för att kunna förstå, ta delav eller använda/analysera data långsiktigt? / Will this require special systems, software, source code or other typesof services to understand, access or use / analyze data in the long term?
|
Python public libraries can be used, especially Google Earth Engine.
|
dcce46e8dcc5364de92c6256c1f7a41c
|
dmponline.dcc.ac.uk
|
Ansvar och resurser / Responsibility and resources
|
Vem ansvarar för datahanteringen och eventuellt stödjer arbetet med detta under arbetet med forskningsprojektet?Vem har ansvar för fortsatt förvaltning, och långtidsbevarande av data efter projektavslut? / Who is responsible fordata management and (possibly) supports the work with this while the research project is in progress? Who isresponsible for data management, ongoing management and long-term storage after the research project has ended?
|
Ola Hall, Lund University.
|
dcce46e8dcc5364de92c6256c1f7a41c
|
dmponline.dcc.ac.uk
|
Ansvar och resurser / Responsibility and resources
|
Vilka resurser (kostnad, arbetsinsats eller annat) kommer att krävas för datahantering (inklusive lagring,säkerhetskopiering, tillgängliggörande och hantering för långtidsbevarande)? Vilka resurser kommer behövas för atttillse att data uppfyller FAIR-principerna? (FAIR = Findable, Accessible, Interoperable, Readable, internationella kravför datahantering) / What resources (costs, labour input or other) will be required for data management (includingstorage, back-up, provision of access and processing for long-term storage)? What resources will be needed to ensurethat data complies the FAIR-principles?
|
Nothing special.
|
dcce46e8dcc5364de92c6256c1f7a41c
|
dmponline.dcc.ac.uk
|
0. Administrative questions
|
Name of data management support staff consulted during the preparation of this plan.
|
My supervisor of my graduation project, Prof. Pieter Desmet, has reviewed this DMP.
|
c7ae32e7ad253077baffb663467e4a2c
|
dmponline.dcc.ac.uk
|
IV. Legal and ethical requirements, codes of conduct
|
How will ownership of the data and intellectual property rights to the data be managed?
|
For projects involving commercially-sensitive research or research involving third parties, seek advice of your Faculty Contract Manager when answering this question. If this is not the case, you can use the example below. Only the research team will have access to all the data
|
c7ae32e7ad253077baffb663467e4a2c
|
dmponline.dcc.ac.uk
|
IV. Legal and ethical requirements, codes of conduct
|
Please list the categories of data subjects
|
Students who posses traits of a neurodivergent person will be interviewed. Course coordinators and professors will also be interviewed to understand their perspective on making diverse design teams.
|
c7ae32e7ad253077baffb663467e4a2c
|
dmponline.dcc.ac.uk
|
VI. Data management responsibilities and resources
|
If you leave TU Delft (or are unavailable), who is going to be responsible for the data resulting from this project?
|
The Head of the Human Centred Design Department in IDE
|
c7ae32e7ad253077baffb663467e4a2c
|
dmponline.dcc.ac.uk
|
VI. Data management responsibilities and resources
|
What resources (for example financial and time) will be dedicated to data management and ensuring that data willbe FAIR (Findable, Accessible, Interoperable, Re-usable)?
|
The student thesis repository of TUDelft has quite a large number of space available for each researcher to store the data free of charge. We do not expect to exceed this and therefore there are no additional costs of long term preservation.
|
c7ae32e7ad253077baffb663467e4a2c
|
dmponline.dcc.ac.uk
|
Data Collection
|
What data will you collect or create?
|
HIV PATIENTS
|
d119849c6a1a6474f95103d604fa601e
|
dmponline.dcc.ac.uk
|
Data Collection
|
How will the data be collected or created?
|
USING WORLD HEALTH ORGANIZATIONS
|
d119849c6a1a6474f95103d604fa601e
|
dmponline.dcc.ac.uk
|
Documentation and Metadata
|
What documentation and metadata will accompany the data?
|
COUNTRY BASED ANALYSIS
|
d119849c6a1a6474f95103d604fa601e
|
dmponline.dcc.ac.uk
|
Ethics and Legal Compliance
|
How will you manage any ethical issues?
|
THERE WILL BE NO SPECIFIC NAMES OF INDIVIDUALS WHO HAVE CONTRACTED THE DISEASE FOR THE PUBLIC.
|
d119849c6a1a6474f95103d604fa601e
|
dmponline.dcc.ac.uk
|
Ethics and Legal Compliance
|
How will you manage copyright and Intellectual Property Rights (IPR) issues?
|
CITING EVERY DATA USED FROM THIRD PARTIES, AND REQUESTING SIGN WAIVER FOR INDIVISUALS.
|
d119849c6a1a6474f95103d604fa601e
|
dmponline.dcc.ac.uk
|
Storage and Backup
|
How will the data be stored and backed up during the research?
|
THE DATA WILL BE BACKED UP TO THE CLOUD, AND THE DATA MANAGER WILL BE RESPONSIBLE FOR BACKUP AND RECOVERY.
|
d119849c6a1a6474f95103d604fa601e
|
dmponline.dcc.ac.uk
|
Storage and Backup
|
How will you manage access and security?
|
DATA WILL BE USED BY KNOWN ORGANIZATIONS ONLY.
|
d119849c6a1a6474f95103d604fa601e
|
dmponline.dcc.ac.uk
|
Selection and Preservation
|
Which data are of long-term value and should be retained, shared, and/or preserved?
|
THE NUMBER OF PATIENTS WHO HAVE CONTACTED THE DISEASE WHICH WILL BE COUNTED ANNUALLY.
|
d119849c6a1a6474f95103d604fa601e
|
dmponline.dcc.ac.uk
|
Selection and Preservation
|
What is the long-term preservation plan for the dataset?
|
UPDATE ANNUALLY OF NEW PATIENTS THAT HAVE CONTRACTED THE DISEASE.
|
d119849c6a1a6474f95103d604fa601e
|
dmponline.dcc.ac.uk
|
Data Sharing
|
How will you share the data?
|
ONLY TO POTENTIAL USERS, WHICH ARE BIG HEALTH INSTITUTIONS ONLY.
|
d119849c6a1a6474f95103d604fa601e
|
dmponline.dcc.ac.uk
|
Data Sharing
|
Are any restrictions on data sharing required?
|
YES, THE DATASETS SHOULD BE ONLY ACCESSED TO AUTHORIZED USERS ONLY
|
d119849c6a1a6474f95103d604fa601e
|
dmponline.dcc.ac.uk
|
Responsibilities and Resources
|
Who will be responsible for data management?
|
THE DATA MANAGER
|
d119849c6a1a6474f95103d604fa601e
|
dmponline.dcc.ac.uk
|
Responsibilities and Resources
|
What resources will you require to deliver your plan?
|
ANNUAL AFRICAN HIV PATIENTS COUNT
|
d119849c6a1a6474f95103d604fa601e
|
dmponline.dcc.ac.uk
|
Manchester Data Management Outline
|
Who will act as the data custodian for this study, and so be responsible for the information involved?
|
Helen Brooks
|
43cb4f28be64ddb535973a1dd4e71bc7
|
dmponline.dcc.ac.uk
|
Project details
|
What is the purpose of your research project?
|
An individual’s age is often considered to be the biggest risk factor for starting and continuing to self-harm, with rates of the behaviour being much higher among young people (NICE, 2002). McManus et al. (2019) demonstrated how in young people (16-24 years), the prevalence of self-harm tripled over the course of 4 years, with 1 in 5 young females self-harming on a regular basis. Receiving adequate social support from personal support networks is a recognised protective factor for young people’s mental health across the developmental period. Personal support networks are defined as the ‘set of active and significant ties that are most important to people’ (Vassilev et al., 2014). Recent evidence demonstrates the pivotal role pets play in the management of chronic physical (Brooks et al., 2012) and mental health conditions (Brooks et al., 2018) amongst adult populations but research amongst young people in this regard is distinctly lacking. A notable exception is Khalid et al.’s (2021) study which demonstrated the importance of pets in maintaining a sense of well-being amongst undergraduate students, highlighting the potential importance of pets to young people. Hawkins et al. (2021) found that pets increased hedonic tone, prevented suicide attempts and reduced self- harm urges but only 4% of the sample were aged 18-24, limiting the application of these results to young people. The proposed study aims to address this gap in knowledge by developing an in-depth understanding of the relationships young people have with their pets and how these relationships impact the management of mental health conditions and self-harming behaviour. The aim of this project is to: 1. Explore the rates of pet ownership* and pet attachment amongst young people with mental health problems who self-harm and examine pet ownership associations with mental health, quality of life and self-efficacy (Phase 1) 2. Develop an in-depth understanding of the relationships young people have with their pets and how these relationships contribute to: 1. The management of diagnosed mental health conditions (Phase 2) 2. Self-harm and other risk behaviours (Phase 2) 3. Develop an in-depth understanding of the mechanisms through which pets are perceived to contribute to the management of mental health and self-harm in young people, and identify priorities for future mental health AAI interventions (Phase 2). *Defined as living with a companion animal .
|
43cb4f28be64ddb535973a1dd4e71bc7
|
dmponline.dcc.ac.uk
|
Responsibilities and Resources
|
Who will be responsible for data management?
|
Emily Vicary - PhD Researcher (Principal Investigator) will be responsible for all data activities for this PhD Project including: data capture, data quality, storage, backup and sharing with the research team (Dr Helen Brooks, Prof. Anne Rogers, Dr Dharmi Kapadia) where appropriate. Anne Rogers will only receive write ups of results and versions of the final manuscript. No raw participant data will be shared with Anne.
|
43cb4f28be64ddb535973a1dd4e71bc7
|
dmponline.dcc.ac.uk
|
Data Collection
|
How will the data be collected or created?
|
Survey data will be collected via Qualtrics. Qualtrics’ most important concern is the protection and reliability of customer data. Their servers are protected by high-end firewall systems and scans are performed regularly to ensure that any vulnerabilities are quickly found and patched. Application penetration tests are performed annually by an independent third-party. All services have quick failover points and redundant hardware, with backups performed daily. Access to systems is restricted to specific individuals who have a need-to-know such information and who are bound by confidentiality obligations. Access is monitored and audited for compliance. Qualtrics uses Transport Layer Security (TLS) encryption (also known as HTTPS) for all transmitted data. Their services are hosted by trusted data centres that are independently audited using the industry standard SSAE-18 method. Data will be anonymised automatically by Qualtrics upon submission and exported as an .xls format for analysis in SPSS. To ensure consistent and high quality data is collected during Phase 2, only standardised and validated measures of pet attachment, mental health, self-harming behaviours, experience of suicidal thoughts will be utilised. Attention check questions will also be utilised to ensure full-attention is being paid throughout the duration of the survey. Audio data will be collected through 1:1 interviews during Phase 2. Interviews will be recorded via an end-to-end encrypted Zoom recording and transferred to the University P-drive as soon as possible. Standardised methods and protocols - i.e., interview schedule - acts as a quality assurance measure. Files will be deleted from the local computer immediately after. Associated Verbatim Reports is a University approved transcript service that will be utilised during this project. Audio files of interviews will be password protected and shared with AVR via Egress. Egress is a UK-based software company providing security software for e-mail, secure messaging, Document and Email Classification, and associated technologies to assist secure file sharing and handling. AVR also note the following about security and confidentiality: All staff are security vetted to DBS level as a minimum. We also have a team who have NPPV (Non Police Personnel Vetting) Level 3, and all staff are currently undergoing full SC clearance. Each employee is required to sign the Official Secrets Act and confidentiality agreements. AVR’s offices are located on a modern, secure business park which is protected by perimeter fencing, 24 hour CCTV coverage with intercom barrier and electronic gates which can only be accessed via an authorised security pass. Security passes are also required to gain access to AVR’s office itself, which is further protected by a NACOSS grade 3c Redcare alarm system, incorporating an automated police response. Higher security information is held inside the restricted suite within the unit, which has the added protection of a door code. Following receipt of the final transcript, the PI (EV) will check the transcript for accuracy alongside the audio recording. Any changes made to transcripts will be logged using Tracked Changes in Microsoft Word. To support data analysis, the PI will make field notes during data collection and review notes after each interview. Data collection is not expected to stop before the researcher can conclude with the research team that data saturation has been reached. Sociodemographic information will be collected throughout all 2 discussed phases using a form filled out by participants.
|
43cb4f28be64ddb535973a1dd4e71bc7
|
dmponline.dcc.ac.uk
|
Documentation and Metadata
|
What documentation and metadata will accompany the data?
|
Password-protected audio-recorded interviews and transcripts of the interviews. Password-protected Excel files containing ID number (Phase 1 and 2). Password-protected files containing sociodemographic information across all phases. Password-protected folder containing consent forms. If necessary, physical copies of anonymised transcripts (Phase 2) will be stored in a locked cabinet in the researcher's locked PGR office (Jean McFarlane Building). Digital versions of network diagrams (Phase 2) will be password-protected.
|
43cb4f28be64ddb535973a1dd4e71bc7
|
dmponline.dcc.ac.uk
|
Ethics and Legal Compliance
|
How will you manage copyright and Intellectual Property Rights (IPR) issues?
|
No copyright or Intellectual Property Rights (IPR) issues are anticipated.
|
43cb4f28be64ddb535973a1dd4e71bc7
|
dmponline.dcc.ac.uk
|
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