It is unfortunate however when a child has any life threatening medical condition this is really the only approach that works.  They must grow up much earlier than other children and take responsibility for themselves because it will never be safe for them to rely on every other person and environment to take care of them. Doesn't hurt for the surrounding community to know and learn how to help (recognize signs and know First Aid in general) but ultimately the child needs to know they are responsible for their own survival.