Because there are so many misperceptions about living with dementia, most people think if someone has dementia, they are unable to fully communicate.  There is a mindset that once an individual is diagnosed with dementia, they are experiencing advanced symptoms that includes impaired communication.  This isn’t the case though.  Due to societal stigma and misperceptions, most people living with dementia don’t want to speak out about having dementia for fear of being labeled and diminished.

Baby boomers and younger individuals living with dementia are changing society’s understanding about living with the symptoms of dementia. They are living proactively and identifying strategies and accommodations for changing abilities so they can continue to live their lives as fully as possible with dementia. They are helping to create a better society in which to live with dementia.

People living with dementia are educating that some of the most beneficial ways to manage their symptoms don’t require medical involvement. Research shows that eating healthily, getting a good night’s sleep, reducing stress and daily exercise are some important “to do’s”. It is also important to have a proactive, problem-solving mindset, be engaged in stimulating and interesting activities, and maintain strong social networks including peer support.


  1. A national Speakers Bureau of inspiring speakers living with dementia who provide heartwarming and informative talks at forums, conferences and other events.
  2. An ON THE MARK program that provides a unique opportunity for companies and organization to get targeted feedback from individuals living with dementia and care partners on an existing product or service, an upcoming launch, or a budding concept for a product or service.
  3. Two monthly podcasts hosted and produced by individuals living with dementia, This Dementia Life and Professional Insights