bitter pill






Give: http://www.calvinscure.com


  1. I'm so sorry this happened again. Forty days is a long time. If the past several seizures have all started in the bath, is there any possibility that something about the bath is triggering them? Would it be feasible to switch to showers (and a shower chair) for a while?

    RR Julia

  2. dear julia,
    calvin does not stand still by himself well, or even with help. he is all go, go, go. a shower chair would be difficult. there is a possibility something about the bath is a trigger but just as likely it is the time of day—a "trough" just before his evening seizure meds when they are at a low point in his blood.
    calvin has had a history of having seizures in patterns at particular times of the day. used to happen a lot when he'd wake. then they changed to 10:00 am. last summer they were happening right after dinner time/bedtime. my gut tells me he'd have the seizure anyway, and he LOVES the bath. so few things for my boy to LOVE, you know?
    thank you for your kindness and concern. where do you write from?

  3. I'm so glad he loves his bath! When my kids were little they did too. You are probably right about the time of day being the trigger. Would it make sense to bathe him at a different time? IN the bath tub seems like such a scary place for a seizure. But you have thought about all of this--and you know best what is best for your boy.

    I'm in Houston. I found your site from the Little Seal site. And there is another story that breaks my heart. Don't think I only read sad blogs--I read Chickens in the Road and the Yarn Harlot for example. I think the common factor in all of them is openness, honesty, and a feeling of connection. It does occur to me for the first time that I only read blogs by women. Hmm. Have to think about that.

    RR Julia

  4. might be a thought to do bath at a different time. thanks for your consideration! xo

  5. oh, christy, so hard to accept after that long seizure free spell. we get lulled into thinking, maybe it's over! it's punch in the gut re-traumatizing, isn't it. my therapist reminded me this week that i have to constantly look at the dialectic of acceptance and change: what must i accept? what can i change? every single moment with lisbeth, every single day. and you with calvin. with all the unpredictability, and all that is out of your control: what must you accept? what can you change? it is so very hard to do the acceptance piece. (still workin' on that one...) xo