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I also have neuropathy in hands and feet that currently isn't explained. A brain scan showed lesions that looked like MS but it isn't that. I think I have had every diagnostic test possible apart from brain biopsy and I'm not going there unless it gets life-threatening.

Latest theory is "vasculitis" i.e. inflammation of the blood vessels supplying the nerves due to auto-immune problems.

I can get by with anti-inflammatories (diclofenac) and a range of painkillers but I think it is getting worse, either that or I am getting tolerant to the medication.

I just had another brain scan to compare with one 6 months ago to see if it is progressing, I don't get the results until 26th because my Neurologist is on vacation. If it is then they want to knock out my immune system with Cytoxan and Prednisilone. The theory is that when the immune system recovers it will behave normally.

That is pretty scarey and no doubt means yet another stay in Hospital but it is close to ruining my life so I guess I go along with it.

Worst part is my wife died nearly 10 years ago from another form of "vasculitis", a really terrible condition so I can't help thinking of that.

I posted in other forums my question - Anyone had experience of "Cranial Vasculitis".

Take care, Brian


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