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How is the relationship between patients and pharma businesses changing? In this interview, Ron Cohen, the CEO of biotechnology company Acorda Therapeutics, explains how digitization is changing the nature of consumer engagement and how he has sought to embed new technologies and create a culture of risk taking within his organization. An edited transcript of the interview follows.
When I grew up in the industry, things were pretty well set in terms of how pharmaceutical companies engaged with patients—which is to say that you didn’t engage all that much.
But now, for various reasons, that has changed. It’s changed because various patient groups have insisted that it change—and rightly so. Today, patients are demanding more of a say in the type of care they get, the type of medicines that are being developed, how the medicines are going to be applied to them, and what the regulatory pathway should be.
When you put all this together, it’s clear that there needs to be a brand-new level of deep engagement with the patients for your drugs, starting at the very early parts of development all the way through to commercialization and beyond. The good news is that all of this is coinciding with a revolution in digital technology and social media—in the ability to reach people with particular characteristics all over the world.
At Acorda Therapeutics, we have been approaching this need to integrate the patient in a number of ways. One of them is not digital—one of them is good old-fashioned face-to-face engagement with patient groups and patient ambassadors. We can interact with them to learn about their needs and also educate them about what we’re doing. Just because we have digital, it doesn’t mean that there isn’t a need for the other piece. In fact, you need them both to be successful.
A few years ago, I started a digital-innovation-and-strategy group at the company because it was clear that we could integrate digital into everything we were doing, including our internal operations, as well as our clinical development, our commercial marketing, and our drug development.
I engaged with the leadership team, such as the head of commercial, the head of clinical and medical, the head of R&D, and our internal creative staff—all the people who report to me. And over time, we identified the areas that we wanted to focus on. For example, the medical-affairs team engaged with the digital-strategy group to develop a way to integrate more closely with our patient community.
And so our group developed a