 to tell you don't ever think you are being negative on the boards. You provide a lot of strength to a lot of people on here. And you are honest - donors need that honesty and reality. There are too many people so caught up in the euphoria of donating that they don't stop to really think about what they need to be prepared for not only for surgery but for the rest of their life. People have to hear both sides.
I remember how bad and guilty I felt because I was scared and worried. When I read posts from other people who were so happy and "couldn't wait", I felt like something was wrong with me. Not true! There are people out there who feel the same, and it was comforting to see those posts.
Hang in there. We are praying for you.
with my problems..haha.
My computer whacked out on me Friday night..I mean..BIG TIME....so many weird things going on I had to take it to the guy who works on it for me...and even HE had never seen a computer do what mine was doing. But he had to completely clean my hard drive and installed Windows 7 on it..which so far I like...and now I am backing up all my back up files..haha..moving them to my external hard drive...just in case. He is not sure it is up and running for good or if it will act up again..we will see.
I had to go to all the sites I go to..and my email and stuff and change all my passwords..that was fun thinking up all new ones..
Just catching up with your last two blog comments. I certainly hope you find out what is up with your health soon. Worrying is hard not to do. I will pray that you can rest your mind from all of this and be able to remember more. I play mind games with myself so I can teach myself to remember things.
For example, if there is something I need to remember, I will not write it down and just stop and say to myself, I will remember this and I always do. The more I practice this the more I train my memory to recall stuff. I have been doing this for so many years and I will say it really works.
Rise I think one of the meds I am on makes me kinda scatter brained and not able to remember stuff...that and getting older? I have journals and stuff and I am going to have to go back through them and write down specific dates that stuff happened..get tired thinking about it.
True..what better do you have to do in ICU other than play mind games with yourself..that is funny.
Had a good day without any problems with the burning...went to church and it was actually cool in there..yippee!! and then at 3 I went over to mom and dad's to have cake and ice cream to celebrate my grandma's 102nd birthday..wow..and I knew the minute I walked in I was going to be in trouble. I made it an hour and could not stay any longer. My face was so burning hot...not sweaty..burning..red..hot. my makeup covers it up pretty good..although I could see my face was red..not til I got home and washed my face..which helps...could you really tell how red it was. I had to come home and sit with a fan on my face. not fun when it is cool in here already and it is Nov..in the Midwest...need I say more?
It was an awesome Nov. day..in the 60's. I think it is supposed to be that was for a few days..We sure need rain here. The place I take a lot of my pics...is drying up terribly. not good going into winter.
ok..I am tired. My little 4 legged daughter got me up at normal time instead of letting me sleep an extra hour..she has an internal alarm clock..no kidding. She will sit in front of her food bowl about an hour or half an hour before it is time to feed her..knowing it is gonna be time soon....
Happy Birthday to Grandma. WOW! She is so blessed!
Take good care of yourself and you will see her age too.
I am sorry you are going through this stuff with your face. I was thinking of you this evening and here you are writing to me.
I have been telling everyone I hope I did not inherit her longevity gene...no way do I want to live that long!!..she is still walking around and helping with dishes, etc. She has some confusion and some pain in her joints....but does very well. She does keep my mom hopping though. I will resize a photo and put it on here.
Well it is supposed to be around 70 here today. That is weird for Nov..but I will take it...I think.
Think I will go take a walk today outside since it is going to be so nice. THe leaves are either brown and dead and still on the trees, or fallen already. Not too pretty out. But maybe I will find something to take a picture of. The Wetlands where I get a lot of my bird pics is so dried up there is rarely anything there. We need rain very very bad. I don't remember the last time it really rained..no kidding.
Also hoping to hear from Mayo. If no one calls today, I will call the doctor who is referring me to make sure they did call. The way things go with me..I would be the one out of a million they forgot to call about..haha.
I am sorry that I have not posted in awhile. I have been a busy bee. I was dogsitting for my parents dog. They went to California to visit my brother - luckies!! We also went to Cleveland over the weekend for Jerry's sister's 40th birthday party and then all the normal running around I do. I just haven't had much computer time.
I have read all of your posts. I am just so sorry that you are dealing with such frustrating things. It's so hard when you no one can give you a definitive diagnosis. This ping pong game you have been playing with the specialists has to be draining and confusing. I just it when one tells you one thing and the other says the opposite. Who do you put your trust in. I am sooo glad that you are going to Mayo. I pray that they can give you some more concrete answers. Just be prepared to be put through the test ringer. LOL!! I think I had more tests there than I have had in my life. YIKES!!
It's a good place and I am sure you will get some answers. Don't get to worried that they haven't called yet. It's a huge place and it takes some time to get all of your paperwork straight. They will call you, but I agree that if you don't hear something soon you should call them.
I glad that you found the information on the Best Western Soldier's Field helpful. We were very comfortable there. It wasn't the best we have stayed in, but it was clean, reasonably priced, and it had great transportation to Mayo. Oh - they had coin operated laundry too, so we were able to get our laundry done. They also had wireless internet for free and a good continental breakfast. It worked for us.
Please let us know when you are going. I am anxious to hear what they have to say. I will tell you that you will be amazed at how things run there. It's pretty amazing. Cleveland Clinic runs a lot like it, but I think Mayo is bigger.
I am always praying for you!!
Don't you apologize for living life!!! I am so happy you are busy.
I called the doctor in Indy and made sure they had called Mayo. They had and Mayo said there is a waiting list..of course and could be into Jan. before I get in. I will call Mayo next week if I don't hear from them. Surely they can give me a date.
Gorgeous weather here this week til the weekend..then cold again. But am enjoying the Indian summer while it is here. I raked and mulched leaves today..not too much raking..and mowed the back yard, got rid of more plants.
In spring I will redo the flower beds...hopefully.
I am sure the Best Western will be fine. We just hope it is clean and not noisy...and hopefully we can control our heat..I think most hotels you do have that thing you can mess with.
Thanks for the prayers Karen!
Well this morning I get to babysit with my little E. Joy.  Can't wait to play with her and get some pics!
Hey Heather! Just checking up on you! Did you ever hear from Mayo?
How did the babysitting go last week?
Our niece is almost two and you are right - they are so much fun - exhausting but fun! It's been a long time since we have had little ones around, so it's nice to be able to play and spoil them!
It's a lovely pic of a lovely lady!!!
Well thank you. I am trying to get it smaller...does not look like it happened..haha. Will try again......
ok see how this one goes....
I called Mayo today since they never called me. They said I was on the Rheumatology wait list and it could be 4-6 months. But she suggested I let her put me in as a double booking in Jan. since many people have to cancel. So I will be going on Mon. Jan. 17th. She suggested that date since it was a Mon. and I would have the rest of the week if tests needed done