In cooperation with EATRIS, EPF is pleased to announce a call for patient representatives for a Patient Advisory Committee (PAC) for the EATRIS-Plus Project.
The PAC will inform EATRIS-Plus activities from a patient perspective and identify mechanisms for meaningful patient involvement and input throughout the project. We believe engaging patients at the heart of EATRIS-Plus activities will be key to the success of this project.
We are searching for a group of 4-5 people, which we hope to remain as a consultative body beyond the scope of the project. The group will attend 1 meeting per year for a total of 4 meetings, and one member from the PAC will attend the EATRIS-Plus project’s Annual General meetings. The group will contribute to the development of a patient involvement toolkit for translational researchers and will be consulted on key deliverables of the project.
The first meeting of the Patient Advisory Committee will be convened by November of this year, with planning activities beginning shortly after the summer period.
We are searching for patient representatives from a diverse range of disease areas, age groups, genders and geographical origins. Applicants must:
Have prior employment or voluntary experience in:
Communications, or advocacy, or training.
Alternatively, work or voluntary experience with healthcare providers
Reside in one of the 27 EU Member States, or in Europe
Please download and complete the application form. The application form consists of questions about your personal details (name, country of residence, experience), short questions about your motivation for applying, a declaration of interest, and information on how EPF will process your personal information.
Please attach a CV to support your application. Completed application forms and supporting documents should be sent to EATRISPLUS@eu-patient.eu by 1 July 2020.
The call is open from 29 May 2020 to 1 July 2020 - totalling one month to submit applications. Applications will be evaluated by two EPF staff and one representative from the project coordinator, EATRIS. Applicants can expect a reply one month after the closing date of the call.
29 May – launch of the call
1 July – closing of the call
31 July – results of the procedure
November – first meeting of the PAC
If you have any questions about the Patient Advisory Committee or the application, please contact: EATRISPLUS@eu-patient.eu
To submit your application form, please submit the fully completed application form with attached supporting documents to EATRISPLUS@eu-patient.eu by 1 July 2020.
EATRIS-Plus will deliver innovative scientific tools to the research community, and will reinforce EATRIS’ leadership in the European Research Area, particularly in the field of Personalised Medicine research and development. EATRIS-Plus will work towards improving the understanding, data-sharing, and clinical needs of how gene, protein, mRNA and metabolite analysis will directly impact Personalised Medicine Solutions.
EPF is leading on the work on Stakeholder Engagement. To this aim, the Patient Advisory Committee will drive patient empowerment at the heart of EATRIS’s operations, and develop a patient involvement toolkit for translational researchers. We will also leverage our network to support in the international collaboration aspects of the work, including promoting more patient-driven research, launching a joint advocacy programme, and position papers with patient perspectives which are central to the work of the project.
To learn more about the project, visit the EATRIS-Plus website or head to our dedicated project page to learn more about EPF’s role and why this matters for patients.
EATRIS+ application form - final.docx