a nightmare at 35; impossible at 60 to care for myself. why do i even try? 30 years of still arguing about the name! ask any of us: we. don’t. care! fix the illness, not the damn name!
i have been ill 20 years now. long ago, i had faith that a cure or at least a treatment would be found any day. now i feel as i will die with this illness, never able to remember what feeling good feels like again. i have lost all hope. i give up. 