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Prevalance of Scleroderma: Estimates for the number of people in the United States with systemic sclerosis range from 40,000 to 165,000. By contrast, a survey that included all scleroderma-related disorders, including Raynaud's phenomenon, suggested a number between 250,000 and 992,500.bout prevalence and incidence statistics: The term 'prevalence' of Scleroderma usually refers to the estimated population of people who are managing Scleroderma at any given time.
Two Main Types. There are two main types of scleroderma: Localized and Systemic. The systemic forms can affect any part of the body (skin, blood vessels, and internal organs.) The systemic forms are also referred to as systemic sclerosis plus other terms such as diffuse, limited, CREST, and overlap.ystemic Sclerosis (Scleroderma): Prognosis and Mortality. Now that the full range of types and severity of scleroderma are being recognized and diagnosed, there is increasing awareness that many people have a milder type of illness with a much rosier longterm prognosis. ISN.