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Ocea Varney, now 18 months, was born with her tongue stuck poking out due to a rare genetic condition. Ocea suffers from Beckwith Wiedemann Syndrome (BWS), a congential overgrowth disorder which affects one in 13,700 newborns worldwide. She is pictured with mother Melanie, 28.
But I think with time and me being the weird kid I was and always sticking out my tongue it could have â¦stretched.â Lewis said in a Barcroft TV interview. Lewis (or as she calls herself on social media, âLong Tongue Lewisâ) can touch her elbow, her nose, her eye (with help of her hand), and even roll it.