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Soliris is a breakthrough, potentially lifesaving treatment for two rare blood diseases, affecting about 180 patients in Canada. The board, which has not held an excessive-price hearing since 2012, said it had demanded the U.S.-based firm lower the price and pay back revenue it made above the cap.
By On 02/13/16 AT 8:37 AM. 1  Soliris is widely considered the worldâs most expensive drug, at an average annual price of $440,000. 2  Only 500 new PNH patients are diagnosed each year in the U.S. In 2015, Steve Coffin was one of them.