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Soliris is a breakthrough, potentially lifesaving treatment for two rare blood diseases, affecting about 180 patients in Canada. The board, which has not held an excessive-price hearing since 2012, said it had demanded the U.S.-based firm lower the price and pay back revenue it made above the cap.
The discounted price, though, is kept secret at the companyâs request. Soliris has also been approved to treat atypical hemolytic uremic syndrome (aHUS), a genetic disorder believed to affect 60-90 Canadians, causing dangerous blood clots. The annual treatment cost is $700,000, according to the PMPRB.