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Soliris is a breakthrough, potentially lifesaving treatment for two rare blood diseases, affecting about 180 patients in Canada. The board, which has not held an excessive-price hearing since 2012, said it had demanded the U.S.-based firm lower the price and pay back revenue it made above the cap.
Soliris wins the prize as the most expensive drug in the United States. Unlike many of the drugs on this list, at least Soliris can claim to be a very effective drug, treating paroxysmal nocturnal hemoglobinuria, a disorder affecting about 8,000 Americans.