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Soliris is a breakthrough, potentially lifesaving treatment for two rare blood diseases, affecting about 180 patients in Canada. The board, which has not held an excessive-price hearing since 2012, said it had demanded the U.S.-based firm lower the price and pay back revenue it made above the cap.
All provincial drug plans now cover the cost of Soliris for the 90 or so patients in Canada with paroxysmal nocturnal hemoglobinuria (PNH), a rare disorder that destroys red blood cells, threatening organ damage, heart attacks, stroke and blood clots.