Review subfinding 3c: Patients concerns Some patients preferred not to know more about their prognosis, perhaps using denial as a way of coping. Yet most others, including carers, felt they were inadequately informed by healthcare professionals, and felt uncertainty about what would happen as the disease progressed. Thinking about the future was a common preoccupation, with patients expressing very realistic concerns that their life expectancy was limited. (Aldred 2004) Methodological limitations were rated moderate overall. Four studies were rated moderate limitations: each due to a number of limitations that included some of the following; limitations in context, role of researcher, data analysis, research methods rigour, and/or data richness in some sections relevant to our review. Three studies were rated serious limitations due to a lack of reflection on the role of the researcher and data richness; plus limited context and reasoning for the choice of methods for one study, lack of information on context and data collection for another, and lack of rigour of research methods, study aims, and relevance of findings for the third study. Coherence was rated minor concerns overall. Agreement between papers was good in that they all reported a range of people s attitudes and concerns. Variability in people s attitudes is expected, hence the concerns were rated as minor overall. Relevance was rated no or very minor concerns. The relevance of the subfinding to the focus of the review was very high. The data stemmed from seven studies from the UK in a relevant population. Adequacy was rated as no or very minor concerns. The subfinding was general and supported by a number of studies. The finding was descriptive and supported by the richness of data. 