This includes the creation of reference networks (in compliance with point 4.1), Union wide information databases and registries for rare diseases based on common criteria.
Áirítear leis sin líonraí tagartha a chruthú (i gcomhlíonadh phointe 4.1), mar aon le bunachair sonraí agus cláir ar fud an Aontais ar ghalair neamhchoitianta bunaithe ar na critéir choiteanna.