article: SECTION 1. SHORT TITLE. This Act may be cited as the ``Developmental Disabilities Assistance and Bill of Rights Act Amendments of 1993''. SEC. 2. TITLE AND PART HEADINGS. (a) Title.--The heading of title I of the Developmental Disabilities Assistance and Bill of Rights Act (42 U.S.C. 6000 et seq.) is amended to read as follows: ``TITLE I--PROGRAMS FOR INDIVIDUALS WITH DEVELOPMENTAL DISABILITIES''. (b) Part.--The heading of part A of title I of the Developmental Disabilities Assistance and Bill of Rights Act (42 U.S.C. 6000 et seq.) is amended to read as follows: ``PART A--GENERAL PROVISIONS''. SEC. 3. FINDINGS AND PURPOSES. Section 101 of the Developmental Disabilities Assistance and Bill of Rights Act (42 U.S.C. 6000) is amended to read as follows: ``SEC. 101. FINDINGS, PURPOSES, AND POLICY. ``(a) Findings.--The Congress finds that-- ``(1) in 1993 there are more than 3,000,000 individuals with developmental disabilities in the United States; ``(2) disability is a natural part of the human experience that does not diminish the right of individuals with developmental disabilities to enjoy the opportunity to live independently, enjoy self-determination, make choices, contribute to society, and experience full integration and inclusion in the economic, political, social, cultural, and educational mainstream of American society; ``(3) individuals with developmental disabilities continually encounter various forms of discrimination in critical areas; ``(4) there is a lack of public awareness of the capabilities and competencies of individuals with developmental disabilities; ``(5) individuals whose disabilities occur during their developmental period frequently have severe disabilities that are likely to continue indefinitely; ``(6) individuals with developmental disabilities often require lifelong specialized services and assistance, provided in a coordinated and culturally competent manner by many agencies, professionals, advocates, community representatives, and others to eliminate barriers and to meet the needs of such individuals and their families; ``(7) a substantial portion of individuals with developmental disabilities and their families do not have access to appropriate support and services from generic and specialized service systems and remain unserved or underserved; ``(8) family members, friends, and members of the community can play an important role in enhancing the lives of individuals with developmental disabilities, especially when the family and community are provided with the necessary services and supports; and ``(9) the goals of the Nation properly include the goal of providing individuals with developmental disabilities with the opportunities and support to-- ``(A) make informed choices and decisions; ``(B) live in homes and communities in which such individuals can exercise their full rights and responsibilities as citizens; ``(C) pursue meaningful and productive lives; ``(D) contribute to their family, community, State, and Nation; ``(E) have interdependent friendships and relationships with others; and ``(F) achieve full integration and inclusion in society; in an individualized manner, consistent with unique strengths, resources, priorities, concerns, abilities and capabilities of each individual. ``(b) Purpose.--The purpose of this Act is to assure that individuals with developmental disabilities and their families have access to culturally competent services, supports, and other assistance and opportunities that promote independence, productivity, and integration and inclusion into the community, through-- ``(1) support to State Developmental Disabilities Councils in each State to promote, through systemic change, capacity building, and advocacy (consistent with section 101(c)(2)), a consumer and family-centered, comprehensive system, and a coordinated array of services, supports, and other assistance for individuals with developmental disabilities and their families; ``(2) support to protection and advocacy systems in each State to protect the legal and human rights of individuals with developmental disabilities; ``(3) support to university affiliated programs to provide interdisciplinary preservice preparation of students and fellows, community service activities, and the dissemination of information and research findings; and ``(4) support to national initiatives to collect necessary data, provide technical assistance to State Developmental Disabilities Councils, protection, and advocacy systems and university affiliated programs, and support other nationally significant activities. ``(c) Policy.--It is the policy of the United States that all programs, projects, and activities receiving assistance under this Act shall be carried out in a manner consistent with the principles that-- ``(1) individuals with developmental disabilities, including those with the most severe developmental disabilities, are capable of achieving independence, productivity, and integration and inclusion into the community, and the provision of services, supports and other assistance can improve such individuals' ability to achieve independence, productivity, and integration and inclusion; ``(2) individuals with developmental disabilities and their families have competencies, capabilities and personal goals that should be recognized, supported, and encouraged and any assistance should be provided in an individualized manner, consistent with the unique strengths, resources, priorities, concerns, abilities, and capabilities of the individual; ``(3) individuals with developmental disabilities and their families are the primary decisionmakers regarding the services and supports such individuals and their families receive and play decisionmaking roles in policies and programs that affect the lives of such individuals and their families; ``(4) services, supports, and other assistance are provided in a manner that demonstrates respect for individual dignity, personal preferences, and cultural differences; ``(5) communities accept and support individuals with developmental disabilities and are enriched by the full and active participation and the contributions by individuals with developmental disabilities and their families; and ``(6) individuals with developmental disabilities have opportunities and the necessary support to be included in community life, have interdependent relationships, live in homes and communities, and make contributions to their families, community, State, and Nation.''. SEC. 4. TECHNICAL AMENDMENTS. (a) Protection and Advocacy of the Rights of Individuals With Developmental Disabilities.--The heading of part C of title I of the Developmental Disabilities Assistance and Bill of Rights Act (42 U.S.C. 6041 et seq.) is amended to read as follows: ``PART C--PROTECTION AND ADVOCACY OF THE RIGHTS OF INDIVIDUALS WITH DEVELOPMENTAL DISABILITIES''. (b) System Required.--Section 142 of the Developmental Disabilities Assistance and Bill of Rights Act (42 U.S.C. 6042) is amended by adding at the end the following subsection: ``(i) Public Notice of Federal Onsite Review.--The Secretary shall provide advance public notice of any Federal programmatic and administrative review and solicit public comment on the system funded under this part through such notice. The findings of the public comment solicitation notice shall be included in the onsite visit report. The results of such reviews shall be distributed to the Governor of the State and to other interested public and private parties.''. (c) Definition Regarding University Affiliated Programs.--The Developmental Disabilities Assistance and Bill of Rights Act (42 U.S.C. 6000 et seq.) is amended-- (1) in section 102(1)-- (A) by inserting ``, except as provided in section 155,'' before ``includes''; and (B) by inserting ``the Commonwealth of'' before ``Puerto Rico''; and (2) by adding at the end of part D the following section: ``SEC. 155. DEFINITION. ``For purposes of this part, the term `State' means each of the several States, the District of Columbia, the Commonwealth of Puerto Rico, the Virgin Islands, and Guam.''. SEC. 5. AUTHORIZATIONS OF APPROPRIATIONS. (a) Planning of Priority Area Activities.--Section 130 of the Developmental Disabilities Assistance and Bill of Rights Act (42 U.S.C. 6030) is amended by striking ``$77,400,000'' and all that follows and inserting the following: ``$70,000,000 for fiscal year 1994, and such sums as may be necessary for each of the fiscal years 1995 and 1996.''. (b) Protection and Advocacy of Individual Rights.--Section 143 of the Developmental Disabilities Assistance and Bill of Rights Act (42 U.S.C. 6043) is amended by striking ``$24,200,000'' and all that follows and inserting the following: ``$24,000,000 for fiscal year 1994, and such sums as may be necessary for each of the fiscal years 1995 and 1996.''. (c) University Affiliated Program.--Section 154 of the Developmental Disabilities Assistance and Bill of Rights Act (42 U.S.C. 6064) is amended to read as follows: ``SEC. 154. AUTHORIZATION OF APPROPRIATIONS. ``For the purpose of making grants under subsections (a) through (e) of section 152, there are authorized to be appropriated $19,000,000 for fiscal year 1994, and such sums as may be necessary for each of the fiscal years 1995 and 1996.''. (d) Projects of National Significance.--Section 163(a) of the Developmental Disabilities Assistance and Bill of Rights Act (42 U.S.C. 6083(a)) is amended by striking ``$3,650,000'' and all that follows and inserting the following: ``$4,000,000 for fiscal year 1994, and such sums as may be necessary for each of the fiscal years 1995 and 1996.''.
summary: Developmental Disabilities Assistance and Bill of Rights Act Amendments of 1993 - Amends the Developmental Disabilities Assistance and Bill of Rights Act to revise the Act's statements of findings and purpose and to declare related policy. Requires: (1) advance public notice of any Federal programmatic and administrative review; (2) solicitation of public comment on State systems to protect and advocate the rights of persons with developmental disabilities; (3) inclusion of the comment findings in the onsite visit report; and (4) distribution of the review results. Removes from the definition of "State," as it applies to university affiliated programs under the Act, references to the Northern Mariana Islands, American Samoa, and the Trust Territory of the Pacific Islands. Authorizes appropriations under the Act for priority area activities, protection and advocacy of the rights of individuals with developmental disabilities, university affiliated programs, and projects of national significance.