is too dangerous due to the location of the cavernoma. genetic researchers are still working on determining the cause of the illness and the mechanism behind blood vessel formation. clinical trials are being conducted to better assess when it is appropriate to treat a patient with this malformation and with what treatment method. additionally, long-term studies are being conducted because there is no information related to the long-term outlook of patients with cavernoma. an existing registry known as the international cavernous angioma patient registry collects information from patients diagnosed with cavernoma in order to facilitate discovery of non-invasive treatments.