jones syndrome jones syndrome jones syndrome is an extremely rare disorder characterized by gingival fibromatosis and sensorineural hearing loss. the condition is an inherited but the underlying genetic cause is currently unknown. jones syndromeother names gingival fibromatosis with progressive deafness gfd gingival fibromatosis with sensorineural hearing loss familial gingival fibromatosis associated with progressive deafness epidemiology fewer than 100 cases have been published. according to orphanet, it has been reported in two families. treatment due to the condition's rarity, there are no treatment guidelines.