In this task, you are given a text of many news articles seperated by special token "|||||". Your task is to summarize them.
Q: The mother and son who are allergic to SUNLIGHT: Pair have rare condition which means exposure causes them agonising pain 
  
  
  
 Claire and Sam Turner have a condition that makes their skin very sensitive 
  
 Being exposed to sun or light, their skin can feel as if it's on fire 
  
  
  
 If they go outside during the day they have to cover all of their skin 
  
 They have to wear long sleeves, gloves and to tie scarves around their faces 
  
 Sam is even sensitive to light bulbs so at school has to sit in a dark corner 
  
  
  
 A mother and her son both suffer from a devastating allergy to the sun which means any exposure to it causes them agonising pain. 
  
  
  
 Claire Turner, 50, and son Sam, 13, have a rare medical condition called erythropoietic protoporphyria (EPP) - a condition which causes the skin becomes incredibly sensitive to natural light. 
  
  
  
 Any exposure to the sun causes them agonising pain and Sam’s allergy is so severe he has to remove some light bulbs in the family home because they cause his skin to feel as though it’s on fire. 
  
  
  
 Claire and Sam Turner have a rare genetic condition which makes their skin incredibly sensitive to sunlight 
  
 As a result, they are forced to stay under cover in the daylight hours and wear long sleeves, gloves and even masks to avoid spending days in agony. 
  
  
  
 Ms Turner and Sam even have to cover their faces with scarves if they venture out in sunlight. 
  
 Sam’s condition is so severe it is also triggered by low energy light bulbs and fluorescent strip lights - meaning every unknown building can be a danger to his health. 
  
 Ms Turner, from Thame, Oxfordshire, said: ‘We’re like a vampire family - we can’t come out in the sun and live our lives in the dark. 
  
  
  
 ‘If I stay in the sun for longer than a few minutes it feels like somebody is pouring boiling water over me. 
  
  
  
 ‘Sam is even affected by low energy light bulbs or fluorescent tubes, we have to remove the bulbs from the ceilings at school so that he has an area where he can sit in darkness. 
  
  
  
 If they go outside during the day, Ms Taylor and Sam both have to completely cover their exposed skin to avoid suffering an agonising reaction which makes them feel like they are having boiling water poured over them 
  
 ‘He lives his life looking up - to make sure he doesn’t get hit by the wrong kind of light.’ 
  
  
  
 The windows in the family’s house and car are specially protected against UV rays and they now have a mobility badge so the family can park in spaces nearest to shops and limit exposure to the sun. 
  
  
  
 Ms Turner’s daughter Jo, 16, carries the EPP gene but is not light sensitive - meaning she can go outside in the sun without horrendous pain. 
  
  
  
 Ms Turner said: ‘I thought my children had escaped the condition - until my youngest Sam started having reactions to the light at the age of eight. 
  
  
  
 WHAT IS ERYTHROPOIETIC PROTOPORHYIA (EEP)? 
  
 EPP occurs when there is a build-up of a chemical called protoporphyrin in the blood. The skin is more sensitive to longer ultraviolet wavelengths (UVA) and to visible light. It is caused by a shortage of an enzyme in the body that normally converts the protoporphyrin into a substance called haem. 
  
 As a result of this enzyme deficiency, protoporphyrin levels build up in the blood. 
  
 As blood passes through the skin, the protoporphyrin absorbs the energy from sunlight and this sets off a chemical reaction that can slightly damage surrounding tissues. 
  
 The nerve endings in the skin interpret this as itching or burning pain, and if the blood vessels are affected, they can leak fluid, causing swelling. 
  
 The condition is hereditary and symptoms include developing tingling, itching and burning when exposed to sunlight. There is currently no cure. Source: British Skin Foundation 
  
  
  
 ‘I was devastated - he’s had to learn to live his life all over again by keeping out of the light. 
  
  
  
 ‘If the other boys go outside he can’t go with them - he sits in his room playing Play Station.’ 
  
  
  
 At work as a nursery nurse, Ms Turner has a special black tent for when the children go outside to allow her to perform her duties while staying out of UV rays. 
  
  
  
 She said: ‘Every outing has to be strategically planned - we have to sit at the back of restaurants away from the windows, and we can’t visit swimming pools with glass roofs. 
  
  
  
 ‘We spend our time skirting round the edge of buildings to avoid the sun - the only place we can go easily is the cinema - because we can just sit in the dark.’ 
  
  
  
 The condition means that the family can’t visit hot countries or spend days outside. 
  
  
  
 Ms Turner said: ‘The best family holiday we ever had was a cruise, Sam and I could spend our days below deck playing games and activities whilst Jo sprawled in the sunshine. 
  
  
  
 ‘It’s hard for Sam - it’s something we’ll both have to live with for the rest of our lives.’ 
  
  
  
 The pair have been supported by the British Porphyria Association and now give talks about dealing with the rare condition at their meetings. 
  
  
  
 Hermione Lawson from The British Skin Foundation said: ‘Erythropoietic protoporphyria, also known as EPP, is a rare skin disease that causes the skin to become oversensitive to sunlight. 
  
  
  
 ‘When sunlight reaches the skin, either directly or indirectly, it causes tingling, itching or burning, even redness and swelling, and can be very painful. 
  
  
  
 ‘The condition usually starts in childhood, and although it is a hereditary condition, it is not always passed on from parent to child - so it is not unusual to have just one child with the condition.’ 
  
  
  
 EPP occurs when there is a build-up of a chemical called protoporphyrin in the blood. 
  
  
  
 Ms Turner's daughter, Jo, does not have the condition and so is not sensitive to sunlight 
  
 It is caused by a shortage of an enzyme in the body that normally converts the protoporphyrin into a substance called haem. 
  
  
  
 As a result of this enzyme deficiency, protoporphyrin levels build up in the blood. 
  
  
  
 As blood passes through the skin, the protoporphyrin absorbs the energy from sunlight and this sets off a chemical reaction that can slightly damage surrounding tissues. 
  
  
  
 The nerve endings in the skin interpret this as itching or burning pain, and if the blood vessels are affected, they can leak fluid, causing swelling. 
  
  ||||| Sunny weather gives most people something to smile about, but I long for dark clouds and short days. I suffer from a rare skin condition that means I experience a severe burning sensation when exposed to UV light. 
  
 When it happens, my blood feels as though it's boiling and I can't bear anything touching my skin, including clothes. The pain can last for several days and nights, causing severe sleep deprivation. If it's a bad attack, my hands and face swell up. At times it has lasted for weeks. 
  
 I'm not even safe inside, because the windows of buildings and cars intensify the rays, and lightbulbs can emit small amounts of UV light, as can television and computer screens. On overcast days, the sun pokes through the clouds; it also reflects off concrete, water and snow. 
  
 My two younger sisters also suffer from the condition, and one of my earliest memories is of the three of us huddled in the porch of our house, desperately trying to keep away from the light. We would do anything to hide from the sun, and always wanted the curtains drawn. Our parents couldn't understand it – there were no physical signs of our pain, just some dirty-looking patches on our skin sometimes. 
  
 Eventually, when I was eight, a specialist diagnosed me and my sisters with erythropoietic protoporphyria (EPP), a condition caused by a reaction to the combination of our parents' genes. The diagnosis felt like a mixed blessing: it meant we were allowed to wear jeans, long-sleeved blouses and big straw hats to school, and at break we were allowed to stay under a big oak tree, but it also meant the other children made fun of us, knowing we couldn't chase them. 
  
 I longed to fit in, and that feeling stayed with me at college. One really sunny day, when all the students went to the park, I decided to risk it and join them. That night, my face swelled up like never before and the pain was unbearable. I was supposed to meet my boyfriend – now my husband – the next day, but I couldn't face him, so I asked a friend to say I was ill. Not surprisingly, it didn't take long for him to realise that my condition could be debilitating. 
  
 Later, we wondered whether we should have children, but we went for it and eventually had four. I remember very tentatively taking each of them outside as babies, worrying they had the condition, too. Thankfully, none of them did. 
  
 I was determined that they shouldn't suffer because of my condition. But I did struggle to take them out on clear days, and if we went outdoors or in a very light building, I'd have to announce almost as soon as we got there that we couldn't stay long. School sports days and picnics were a nightmare because I had to sit in the shade, often some distance away, and I paid a high price afterwards. Hot holidays were out of the question and we never went to beaches. 
  
 Sometimes the condition can be extremely severe. In really bad years, it takes just a few seconds of exposure to set off a reaction, and I never get any warning signs. Sadly, the bad years seem to come more often now, and weeks or even months can pass without my being able to leave the house. 
  
 The emotional impact is the worst. While my marriage is strong, not going out much means it's difficult to make friends. When I do go out, I have to wear a big floppy hat, coat, gloves and large sunglasses, which I can't take off even indoors and which make people think I'm peculiar, so they avoid me and often stare. Even my family don't really understand – my daughter gets angry about how I'm dressed. 
  
 At home, my only solution has been UV protective film on all my windows. I used to have it in my car, too, but the law bans that now. 
  
 Two positive things have happened recently, though: I've been put on daily vitamin D tablets, which have helped with the aching bones caused by its deficiency; and a special protective cream minimises the pain more than anything has before. I have also met others with the condition, through Facebook. There are at least 1,000 people in the UK with EPP and I'm also in touch with sufferers in America. Though UV rays mean I can't stay on the computer for long, it's been wonderful to share experiences. For the first time, I have friends who truly get it. 
  
 • As told to Kate Hilpern 
  
 Do you have an experience to share? Email experience@theguardian.com |||||
A: 
A mother and her 13-year-old son in England suffer from a rare allergy that turns sunlight into a source of agony. It's called erythropoietic protoporphyria (EPP), an enzyme deficiency that makes the skin's nerve endings hyper-sensitive to UV rays. Exposure can cause itching and pain, and at times swelling and fluid leakage when blood vessels are affected, the Daily Mail reports. Claire Turner, 50, admits she was "devastated" when she learned her son Sam had the hereditary condition, too—so severely that even low-energy light bulbs can cause him issues. "We’re like a vampire family—we can’t come out in the sun and live our lives in the dark," she says. "If I stay in the sun for longer than a few minutes it feels like somebody is pouring boiling water over me." Claire carefully plans their lives, seating them in restaurants away from windows and avoiding holidays in hot countries. "It's hard for Sam," she says. "It's something we'll both have to live with for the rest of our lives." A small positive: They've received support from the British Porphyria Association and give talks there about dealing with the disease. Georgina Davies, another British sufferer, spoke up in the Guardian about how hard life is with EPP—which even forces her to avoid TVs and computer screens, which also emit UV light. "The emotional impact is the worst," she writes. "While my marriage is strong" and none of her four children have EPP, "not going out much means it's difficult to make friends," and the floppy hat, sunglasses, and gloves she often wears indoors "make people think I'm peculiar." At least, she says, she has gained physical strength by taking vitamin D pills and she's met others with the condition on Facebook. "For the first time, I have friends who truly get it."