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Debbie Evans is a mother who feels using the law is her last resort.
Her 24-year-old son Eden has been in institutions for seven years.
Over a period of five years his weight increased by 16 stone (101kg).
"He would say to me, 'You've got to get me out Mummy, you've got to get me out,'" she said.
Mrs Evans found it difficult to support her son, who has autism and a learning disability, when he lived at home in west London.
She said he had no formal education from the age of eight because there was no proper provision for him.
"It got really hard with him when he was 14; he hadn't had any education and basically he lashed out at me," she said.
"It got to the point that I couldn't breathe - it was 24 hours a day seven days a week."
She sought help and he ended up in an assessment and treatment unit.
These are meant to be short stay hospitals where patients are given a plan of care to support them back into the community, but this did not happen in Eden's case.
"He's been trapped for seven long years," Debbie said.
Emma Jones is a human rights lawyer from Leigh Day solicitors representing about five families living in England.
She believes they have a case to be answered and is exploring avenues for legal action to be taken under the Care Act, the Children's Act and the Human Rights Act.
She said: "In a nutshell, the position we are facing in this country is that there aren't enough community provisions being provided which means that people who no longer meet the criteria to be detained remain locked up because [there is] nowhere else for them to go.
"If they're locked up when they shouldn't be locked up they are detained unlawfully and that's a breach of their human rights."
Since the Winterbourne View scandal in 2011, when an undercover Panorama investigation revealed abuse of people with learning disabilities, there has been debate as to the best way to support some of the most vulnerable people in society.
Numerous reports have been published and NHS England has responded with what is described as a "far reaching" plan.
The aim is to reduce the number of people in institutional care by up to 50% over the next three years by building up the level of support in the community.
There are more than 2,500 people with learning disabilities and autism kept in institutions across England.
According to the latest Learning Disability Census, nearly a third have care plans that clearly state there is no reason for them to receive inpatient care.
A spokesperson for NHS England said: "Every case is different and patients' needs are often extremely complex, but we have been clear that hospitals should not be seen as homes.
"Where admission is deemed by clinicians to be in their best interest, patients should stay no longer than they need to.
"From this month, local areas will begin implementing a plan to ensure that the housing, care and advocacy services become available in each community to provide the high-quality alternatives to hospitals."
The families of those still in the system say that every minute, every hour is valuable and things have so far, moved far too slowly.
A social media campaign is due to launch on Monday called "Seven Days of Action".
Each day will see the release of a new story of someone's son, brother, sister or daughter far away from their families.
They are doing it, they say, to put a face to the numbers.
Families of people with learning disabilities and autism say they are planning to take legal action against local authorities and NHS providers over lack of provision in the community.

The chief secretary to the Treasury was speaking in regard to Starbucks, which last week said it would voluntarily pay more UK corporation tax.
Mr Alexander told the BBC's Andrew Marr Show that the government was continuing efforts to tackle tax avoidance.
He said this work was taking place both in the UK and abroad.
"Taxation for big companies, or for anyone in society, can't be, and mustn't be, a voluntary arrangement," said Mr Alexander.
"Thinking of the tax system as if it is like the church plate going around on a Sunday morning is completely the wrong way to think about it."
He added: "Paying tax is not a voluntary choice, it is not something you can just chose to do willy nilly because you think it will please your customers, it is an obligation."
Coffee chain Starbucks announced on Thursday of last week that it would pay about £20m in UK corporation tax [tax on its profits] over the next two years, following a public outcry over how little it pays.
The company has paid just £8.6m in corporation tax in its 14 years of trading in the UK, and nothing in the last three years, despite UK sales of nearly £400m in 2011.
Two other multinational companies which have also been criticised for paying too little corporation tax - Amazon and Google - both said they would not be following Starbucks' voluntary contribution lead.
London Mayor Boris Johnson on Sunday defended companies, such as Starbucks, for seeking to minimise the level of tax they paid in the UK.
In an interview on Sky News, he said: "Imagine that you are the corporate finance director of one of these companies.
"Your job is to look at the law as it stands. Your fiduciary duty to your shareholders is to minimise your tax exposure."
Mr Johnson added that Starbucks should be praised for announcing that going forward it would voluntarily pay UK corporation tax.
"Now that Starbucks has stepped up to the plate and announced they are going to be making this payment I think rather than everybody sneering at them, people should welcome that," he said.
"My point is it is a bit unfair to bash the companies and then sneer at them when they try to do good."
Mr Alexander also reiterated that the government had announced in last week's Autumn Statement that it was giving HM Revenue & Customs more funds to tackle tax avoidance and evasion.
He said the aim was to get an additional £9bn in tax revenues per year.
Mr Alexander added that the government, together with Germany and France, was putting additional funds into the Organisation for Economic Co-operation and Development, to aid work on establishing global agreements to prevent companies avoiding tax by moving profits from one country to another with a lower tax rate.
"At a time of austerity, everyone has an obligation to to play by the tax rules," he added.
Danny Alexander has told multinational firms that paying tax is an obligation, not "a voluntary choice" they can make to please their customers.

The Parkham WI thought Colin Darch was going to be speaking to them about piracy, not realising he was held hostage for 47 days in 2008.
"They were more embarrassed than me," said Mr Darch, 75.
WI treasurer Steph George, 54, said: "He was such a good sport, but we won't be dressing up again for a while."
The WI group has dressed up to match guest speakers' themes in the past.
So when Mrs George heard that Mr Darch was going to talk about piracy, she and the 14 other members of the group decided they knew what to wear.
"I unfortunately thought it would be a good idea to dress up as pirates," said Mrs George.
"Mr Darch came in and said he had been held hostage by Somali pirates.
"It was embarrassing, but he was such a great chap and he wasn't offended."
Mr Darch, from Appledore, said: "They were a bit nonplussed, but it didn't bother me. They had all made an effort.
"Most of them seemed to be wearing false moustaches and funny hats, it looked like a rehearsal for Pirates of Penzance.
"One lady even had a parrot on her shoulder, but it was actually a fluffy chick."
Mr Darch had been delivering a tug to Singapore when it was boarded by pirates off the coast of northern Somalia.
"Certainly it was the biggest test of my career," said the former Merchant Navy captain.
"There were nine pirates, all armed, with another 20 to 25 who kept coming and going."
The pirates asked for $2.5m (Â£1.6m) but eventually settled for $678,000 (Â£437,000) before Mr Darch and his crew of five were allowed to continue.
After 12 days he and the crew hid in the bilges thinking that a coded message they had sent would bring help from a US Navy ship.
When that failed to happen, negotiations with the tug's owner became "like a poker game".
He said: "The pirates started to fall out. I feared they might shoot one of us to bring some urgency into the situation."
Mr Darch, who is now retired, never took another ship back to that area.
But he found some willing takers at the WI for his book about his experiences.
"His book is very good," said Mrs George. "What a  horrific thing to go through, but he made it very humorous and we had a great evening."

A former ship's captain held hostage by Somali pirates got a red-faced welcome from fancy dress pirates at a Devon Women's Institute (WI).

