AIM: The aim of this study was to explore how members of a stroke carers' support group perceived that services for stroke patients and their carers could be improved.METHOD: A qualitative, experience-based design approach was used to explore the views of ten carers of stroke survivors. Experience questionnaires and a listening lab were used for data collection. Data analysis was carried out using thematic content analysis of the questionnaire and audiotaped transcripts.FINDINGS: Common themes identified included carer loneliness, lack of information, effect of stroke on relationships, carer emotions, loss of privacy and need for ongoing support.CONCLUSION: There are many advantages to be gained for users and organisations from user involvement in service redesign and delivery.
Aged Caregivers