Michael 5, Kalel 4, and Sebastian, 3, have Mucopolysaccharidoses Type II. It’s known as Hunter’s Syndrome, where the body lacks the ability to rid itself of cell waste. It
Michael 5, Kalel 4, and Sebastian, 3, have Mucopolysaccharidoses Type II. It’s known as Hunter’s Syndrome, where the body lacks the ability to rid itself of cell waste. It leads to toxicity in the body and a host of degenerative and developmental problems.
The disease is rare, with less than 500 cases in the US and 2,000 worldwide. The average life span is 12-14 years of age.
“The prospect of having to bury your own child is just difficult to wrap your mind around,” said Sebastian’s father, Mario Estevez.
One of the symptoms which is noticeable is an arthritic complication in the joints. Each of the boys has rigidity in their hands and feet. Their fingers have begun to curl and have what is called “claw hands.”
The bea