2.5.2. Secondary
Anxiety, Dyspnea, Cardiomyopathy, Depression, COPD
COPD, SECONDARY, CARDIOMYOPATHY
The secondary outcomes will be assessed on patients, caregivers, and healthcare professionals.Patients will be assessed on:Patient-Reported Outcome Measurements (PROMs):Health-related quality of life (EQ-5D-5L) [Mood/emotional health (HADS—Hospital Anxiety and Depression Scale) [Activities of daily living (Lawton scale, Barthel Index, Kansas City Cardiomyopathy Questionnaire score, COPD assessment test score) [Complexity (Modified Medical Research Council—mMRC—Dyspnea Scale) [Technology acceptance and future adoption of the ADLIFE intervention (the Unified Theory of Acceptance and Use of Technology, UTAUT) [Resource use and their associated costs will be also assessed on patients [Caregiver will be assessed on:Burden (Zarit Burden Interview, ZBI) [Mental well-being (Warwick-Edinburgh Mental Wellbeing Scale, WEMWBS) [Healthcare professionals will be qualitatively assessed on:Perceived coordination among settings;Quality of the integration of care;Decision making process;Working conditions.All stakeholders will be qualitatively assessed on:Perceived communication;Satisfaction with accessibility, security, and personalized care plans;Barriers/facilitators related to the implementation process.Within the scope of the implementation assessment, contextual factors focusing on local technological, organizational, and human factors, will also be qualitatively assessed before and one year after the start of the intervention in a sub-group of different stakeholders including physicians, general practitioners, nurses, health coordinators, IT staff, and hospital CEOs [