Adaptation of an electronic mobile application
deterioration or disease progression
COMPLICATIONS
The main goal in using an ePRO application is to enhance self-management support (SMS). As an eCCM component, SMS includes the provision of tools and resources for patients to acquire the skills and confidence to manage and monitor their health condition [The application sends patient reminders to fill out the ePROM at the previously mentioned time points, to facilitate data collection [ePRO application—questionnaire interface (left) and patient feedback view (right)Since these features may increase symptom awareness, guidance to perceive their detection as empowering to manage and prevent complications is required, as they can also be perceived as signs of deterioration or disease progression, decreasing perceived self-efficacy [To enable patients to navigate the complete item bank of the PRO-CTCAE™, a symptom selection screen was developed in collaboration with patients from the oncology department and the patient-representative, through a card-sorting exercise. Results were used to adapt the screen presented to patients allowing adding symptoms to be monitored.Integration of ePRO data into clinical information systems (CIS) like the patient’s electronic health record (EHR) is a desired outcome, as it can decrease the technological burden and enhance accessibility of data [