Recruitment and Participants
NF2, NF1, Tumor
SCHWANNOMATOSIS, TUMOR
Advertisements were distributed via listservs through the NF registry within the Children’s Tumor Foundation and global NF centers. A total of 993 patients responded to the flyer, 371 were screened, 286 were eligible, and 228 signed informed consent. Inclusion criteria were (1) diagnoses of NF1, NF2, or schwannomatosis; (2) age 18 years or older; (3) ability to provide informed consent; (4) sixth-grade English reading level or higher; (5) self-reported stress and difficulties coping with NF symptoms; and (6) Perceived Stress Scale score of 6 or higher.