4.2. Patient and Public Involvement
alkaptonuria
ALKAPTONURIA, RECRUITMENT
SONIA 2 was performed within the DevelopAKUre consortium, under a Seventh Framework Programme grant by the European Union. Patient societies were part of the consortium and actively involved in patient recruitment and support. All results obtained by the main study and all satellite studies (including the one in this work) are disseminated at annual alkaptonuria meetings, which are attended by AKU patients and researchers.