Conclusions
SSNS, elevated distress
This is the first study that assessed parental distress, including fathers, and everyday problems in parents of children with new-onset SSNS. Our results show that parents with a child with SSNS do not experience more clinically elevated distress than reference parents at 4 weeks after onset. However, more problems were exhibited in parenting problems as well as several everyday problems, the latter being present in both mothers and fathers. How parental distress develops over time in the presence or absence of relapses warrants further investigation. The results of the longitudinal data of the LEARNS study (up to 2 years of follow-up after onset) are awaited. In the meantime, clinicians are encouraged to monitor parental distress using ParROMs to timely identify symptoms and offer support where needed.