Participants
breast cancer
BREAST CANCER
Women were randomly selected from the PRISMA database using a digital random number calculator, stratified across asymptomatic participants and incident breast cancer cases. This stratification aimed to explore whether breast cancer status affects women's opinions of data sharing. Inclusion criteria included:
Consented to be approached for follow‐up studies,Valid email address and,In possession of a computer, laptop, telephone or tablet with a functional camera and microphone.Personalised study invitation letters with an information leaflet were sent via email. In October 2020, invitations were sent to 200 asymptomatic women (50 per screening region) and 50 breast cancer cases (divided per region as equally as possible, with consideration given to regional follow‐up time). Due to the initial low response (16/250 women; 6.4%), a second batch of invitations was sent to an additional 200 asymptomatic women and 50 cases in November 2020. All women received one general reminder one week after the initial email invitation. Interested women contacted our research team, after which an FG date was scheduled and an informed consent form was mailed to the potential participant. The FGs were carried out between November and December 2020.