Study summary
death
The purpose of this study was to gain a better understanding of the person-specific factors that may influence an individual with MND’s decision to participate in a clinical trial and remain in the trial.Of the 120 participants, 50% went on to be randomised to MND–SMART. An even greater number, 78%, of participants expressed interest in the trial (through completing online interest forms, contacting the trial team or attending screening appointments). Of the 60 study participants who were randomised to MND–SMART, 65% remained trial participants at the 1-year timepoint. Only one individual chose to withdraw from the trial, the remaining individuals who were not retained, remained trial participants until their death.Participants in MND–SMART were highly motivated to engage with MND–SMART, and when randomised as trial participants remained involved with MND–SMART.