Data management and retention of samples
BLOOD
All potential participants will be assigned a unique study-specific participant ID number. All data will be subject to good practice as laid down in the Data Protection Act. Each study stage is tracked so that participant’s (deidentified) status within the study is known, and assessment and other appointment dates are forecasted. This information is held in a secure, password-protected database. Anonymised data from assessments will be uploaded to a secure, password-protected database using secure web-based data entry systems. Minimal personal data (age, sex) will be indexed by each participant’s unique ID number. Blood samples collected in this study may be stored for up to 10 years after the completion of additional research. Stored samples will be coded throughout the sample storage and analysis process and will not be labelled with personal identifiers. Participants may withdraw their consent for their samples to be stored for future research.