Reasons to participate in the clinical trial
COMPLICATIONS, SENSORY DISTURBANCES
Four topics were mostly mentioned by the participants, when asked about their reason to participate in the trial: support research, altruism, getting the intervention treatment, and fear of late complications (Table Reasons to participate in the clinical trial as mentioned by the participantsThemes Condensation Support research The reason to participate in the trial was to support research    “It is the only way we can grow wiser. So, I agreed to participate to help science on its way.” Altruism The reason to participate in the clinical trial was to help other future patients    “I agreed to participate for the sake of future patients, so you can get knowledge that can improve their treatment.” Support research and Altruism The reason to participate in the clinical trial were a combination of helping other future patients and supporting research    “To help others in the long run (…) I want to support research, so we can grow wiser, which can help future patients.” To get the intervention treatment The reason to participate in the clinical trial was to get the intervention treatment     “I wanted to participate in the clinical trial to get the cooling treatment because I wanted to reduce the risk of getting sensory disturbances.” Fear of late complications The reason to participate in the clinical trial was because of a fear of late complications and a hope that the intervention treatment could reduce these late complications    “Additionally, I agreed to participate in the clinical trial because I worry about late complications. That is why I will do what I can to avoid these. I still got lots of years left and that is why I worry about late complications.” – 