Patient and public involvement (PPI)
Mesothelioma, Lung Cancer
EVENTS, MESOTHELIOMA, LUNG CANCER
Patients and members of the public were closely involved in the YLST design. A group of four PPI representatives met regularly during the study design period, providing feedback on the design and suggesting amendments which were incorporated. PPI feedback was presented to both the Research Ethics Committee and Confidentiality Advisory Group. In addition, separate PPI sessions were involved using a pre-existing patient support group, the Leeds Lung Cancer and Mesothelioma Patient Support Group comprising patients and family members. Four events were held during the trial design phase where plans were presented to the group for feedback and comment.