Patient and public involvement (PPI)
encephalitis, Encephalitis
ENCEPHALITIS, ENCEPHALITIS
The Encephalitis Society was involved in the planning of this study, and the training of research nurses and study recruiters. A representative of The Encephalitis Society was on the Trial Management Group and provided a patient-centred research perspective to the study design and conduct. PPI groups were consulted in the development of the essential documents for the study including the participant information sheet and consent forms. Three PPI representatives with previous personal experiences of encephalitis sat on the TSC and contributed to providing overall oversight of the study. Study update meetings were held to which patients previously affected by encephalitis were invited to share their experiences with the study team.