A lack of care, a lack of connectedness
voice of illness, cancer
CANCER, LATE EFFECTS
Though many of the frustrations the participants expressed could be connected to how the health care systems and of follow‐up care are organized in Norway, the participants expressed their frustration at having their needs unmet and revealed a sense of hopelessness when not provided with sufficient information or not feeling understood by their medical professionalsHealth care professionals witness the plight of others. Health care is about bestowing attention on the patient. All clinicians act as meaning‐making vessels for the patients when they recount their individual situation.The harm caused in relationships by a lack of care and responsibility is the main focus of the ethics of care.Many care ethicists emphasize that ethical responsibility, in this case doctors' responsibility to their patients, must fundamentally be seen as an answer to the voice of illness and the expressions of vulnerability, as well as to the strength and the resilience shown by AYA cancer survivor.The lasting physical and psychosocial late effects of cancer in AYA cancer survivors are only understood by health care professionals to a limited degree.