The Treatment and Education Approach for Childhood-Onset Lupus (TEACH) Intervention
COVID distress, fatigue
BEST
The TEACH intervention is a brief, remotely delivered intervention individualized to common cSLE symptoms and developed with patient/caregiver co-investigative feedback. It draws primarily from CBT strategies known to be effective in addressing fatigue [TEACH was originally developed by the PI with her research team at Cincinnati Children’s Hospital Medical Center [For the current trial, TEACH will consist of six live one-hour HIPAA-compliant telehealth (Zoom) video sessions administered weekly (versus in person) with caregiver/partner support (see Table TEACH protocolPsychoeducationCaregiver guidelinesDeep breathingSleep hygieneMuscle relaxation, Pleasant activitiesCommunicationMindfulnessIdentifying automatic thoughtsChallenging automatic thoughtsProblem solvingSelf-advocacyMaintenanceFor those < 18 years, caregiver refers to a parent or other legal guardian; for those 18 years and up, caregivers are optional and can include a parent, partner, or other significant support person. COVID distress and application of coping strategies to manage COVID-distress are mentioned throughout the protocolAt the start of the pandemic (March 2020), the co-investigative team met and unanimously decided to continue the study and modify the intervention to directly address COVID-19. Several TEACH interventionists (MRR, AD) and the PI (NRC) ( attended a training to implement safe telehealth through the American Psychological Association’s course, “Telepsychology Best Practice 101” [