Qualitative data collection
screeningCommunication/messagingParticipants, kaiāwhina/kaumātua
Interviews with women will collect data about their experiences of HPV screening and further investigation after a positive high-risk HPV test result. Throughout the interviews, women will be prompted to indicate where things went well or could be improved.Up to 10 women in each of the following triage groups will be interviewed:HPV16 or HPV18 test result and referral to colposcopyHPV ‘Other’ test result and referral to cytologyHPV ‘Other’ test result and referral to colposcopyThese interviews will be semi-structured around six topics:Their HPV self-test experienceReceiving their resultsThe referral process (triage to cytology or colposcopy)Any support given or desiredTheir cytology or colposcopy experience (or why they might decide not to participate in follow-up)After care and re-screening informationInterviews with key stakeholders such as practice managers, doctors, nurses, kaiāwhina and PHE representatives will provide critical knowledge on barriers and facilitators to implementing HPV self-testing in primary care. These interviews will be semi-structured around three topics:Their views on implementing universal HPV self-testingInformation or training support given or desiredRecommendationsInterviews/focus groups will explore enablers for 25-year-olds to participate in screening. Up to 10 interviews or a series of focus groups with 25-year-olds and their community leaders. These interviews/focus groups will be semi-structured around three topics:Different screening delivery options: free screening, mail-out, self-sampling, direct approach from non-government organisations, kaiāwhina, general practiceOffer of free HPV vaccinationCommunication/messagingInterviews/focus groups, with up to 20 women and 10 kaiāwhina/kaumātua community workers/other primary care staff, will explore support needed for women who are not enrolled in primary care to participate in screening. These interviews/focus groups will be semi-structured around three topics:Different screening delivery options -population based register, free screening, mailout, self-sampling, direct approach from non-government organisations, kaiāwhinaSupport needed to access screeningCommunication/messagingParticipants will be interviewed at a time and location that suits them. Although the research is not restricted to Māori participants, it is anticipated that many will be Māori (given the population of Te Tai Tokerau). The researchers will draw on Kaupapa Māori Research practices, which have also been described as community-up research practices, whereby whakawhanaunga (developing relationships), participant safety, and research accountability are paramount [