Implementation and scale-up
cancer, autism
CANCER, SAID
Recommendations categorized as implementation and scale-up adaptations emphasized increasing access to FN by expanding eligibility criteria and improving publicity about FN availability. The recommendations all represented true adaptations to FN.Three parents and one navigator suggested expanding eligibility to families with children with other intellectual or developmental disabilities. A parent said, “I think [the navigator] helps a lot of people (…) At any point we need their help, but not only for children with autism, but also for children who are deaf-mute and so on. I think it would be very helpful for us parents with children like that” (11). Thirteen parents and one navigator recommended increasing the reach of the intervention in general. A parent said, “I don’t care if it’s autism, cancer, whatever. I feel like any type of family that is dealing with some type of devastating news about their child would benefit from a family navigator” (19). Two parents and one navigator suggested specifically expanding FN for families who do not speak English and/or are undocumented. A Spanish-speaking parent said, “In the group my son was sent to, I met several moms who didn’t know how to go to therapy in [city]. They didn’t know how to go or what to do. And they spoke Spanish. So, people like that could receive guidance and help” (10).Multiple parents made recommendations for disseminating FN through focused marketing or publicity on media platforms such as local television. One parent said, “I think maybe there should be flyers… or more broadcast, like maybe on TV… for somebody who don’t know or haven’t went to a clinic and know that it’s out there to have help from them” (1). Another parent suggested allowing parents to refer other parents who might benefit from navigation: "I think that improving the program would mean to check if there are more people who need it and get in touch with them. Because some of us need it but we don’t know about it. (…) If you give us permission to talk about them, I would be one of those people who could tell other people about the program" (5).