Conclusion
HGG
DISEASE
This intervention was effective in improving carer self-reported preparedness. However, carer distress was not reduced, potentially due to the debilitating and progressive nature of HGG and their ongoing caring responsibilities as the disease progresses. Future research needs to explore the type and timing of support carers of people with HGG would find most helpful and co-design strategies to implement their preferred type of support into usual care. Understanding the longer-term patterns of distress, into the bereavement period, may provide important insights into the effectiveness of interventions such as ours.