Data extracted from national datasets
NHIs, NSU
Each person using a health or disability support service in Aotearoa New Zealand has a unique NHI number. Practices will provide NHI numbers of participating women to the NSU to obtain information about screening and clinical history at the start of the study period, ethnicity, Deprivation Index (socioeconomic status), and age. If there are cases where the relevant information cannot be obtained from the NSU, demographic information will be obtained from the NHI dataset held by Ministry of Health.At the end of the implementation period, the research team will request HPV vaccination status from the NIR for participating women. This is crucial information about expected high-risk HPV positivity. Senior researchers at the NCWHRA will link NSU and NIR data to canSCREENThe NSU will also be the primary source of research data for women who do not opt for an HPV self-test. The practices will provide the NHIs of the eligible population of women to the NSU (minus the women who have had an HPV test) to obtain information about cervical cytology during the implementation period, and the same demographic variables described above. The practices will remove the NHI, assign an ID number and securely transfer de-identified individual line data to NCWHRA for analysis. The practice will retain the list of NHIs and corresponding ID number.No individuals will be identifiable in the reporting of study findings.Study-specific source documents are maintained (for women who opt for HPV self-testing only) in locked file cabinets in locked rooms of NCWHRA. Electronic data are stored on the secure Victoria University of Wellington server, in restricted access folders and password protected files. Data will be retained for 10 years and then destroyed securely.