STRENGTHS AND LIMITATIONS OF THIS STUDY
A strength of the study is the involvement of a patient research partner throughout the conduct of the study, although it may be considered a limitation that only one partner was involved.Self-reported costs combined with several months between assessments may have biased the total costs of the study.We were unable to include medication costs, travel expenses or purchase of technical or medical equipment (except those provided as part of the study) in the analyses due to imprecise reporting.