Discussion
dementia
In this study we report comprehensive data on the needs of primary carers of people living with dementia, informed by a new carer-directed needs assessment designed for a clinical trial. This study emphasizes carers’ perceived needs, the barriers hindering access to accessible resources and inadequate models of care across service providers that drive ED admissions rather than supporting access to palliative care services.While evidence suggests that carers of people living with dementia prefer their care recipients to age-in-place i.e., in their own homes, those with advanced dementia who require 24-hour care at end of life are unable to die at home due to complex care needs and barriers to accessing palliative care services [Family carers often fail to recognise that they are no longer able meet their carer recipient’s needs [Communication between primary carers, family and multidisciplinary hospital and residential aged care staff is often poor, leading to depersonalised care for people with dementia, including palliative care [Many reactive hospital admissions could potentially be avoided if the issues commonly described by participants were better managed by health professionals and earlier referral to palliative care support [When communication between stakeholders is timely, appropriate, collaborative, and person-centred, care provision can ensure quality end-of-life care [