Study procedures
Respondents repeatedly acknowledged the perceived burden of completing the outcome measures.It would be a lot for say, the husband to stay at home, trying to fill in 15 pages, when the wife is not there and then they have to try to adjust living by themselves and with all this happening. (Nurse Practitioner, Female, Site 2)The outcome measures evaluated patient–caregiver outcomes from a biopsychosocial perspective.So, when you were doing it [questionnaires] with the carer, there was a couple of times where it was uncomfortable. They might not want to say that I have low in mood in front of someone. It was quite upsetting for the carer to divulge that information with you, or to bring up things from their past as well. (Physiotherapist, Male, Site 3)