Conclusion
CML
DISEASE, CML
Aim of CMyLife is to provide hospital-free virtual care, by giving CML patients tools and know-how to self-manage their disease. Results of our study suggest that although more symptoms were reported, patient were better able to manage their symptoms. Knowledge on where to find online health information was improved significantly and, albeit not significant, they felt more empowered. Beneficial effects on medication compliance and molecular monitoring were experienced by patients, which is paramount in patient-centered care. CMyLife provides patients with information, tailored in amount and content and in a timely manner. However, we found room for improvement in content of information provision by expanding topics, adjusted to patients’ information needs. Personalized information based on PROs assessed in CMyLife such as symptoms experienced, and quality of life could further enhance self-management. An iterative process of assessing patients’ needs and further adjustment of CMyLife is required to keep care patient-centered, fit CMyLife into future perspectives, and put patients in lead of their disease process. Since hospital-free care has shown to be feasible in time of the COVID-19 pandemic, eHealth-based innovations such as CMyLife could be a solution to maintain quality of care and make current oncological health care services more sustainable.