Design
chronically ill
CHRONICALLY ILL, RECRUITMENT
A non-randomized controlled study (quantitative online survey) over 18 months is ongoing with four measurement points: baseline at the start of the intervention (t0), interim assessments after 6 (t1) and 12 (t2) months, and a final survey after 18 months (t3). In order to be able to identify at least medium effects (Cohen’s d = 0.5) [The study is conducted with parents and other guardians (all genders and ethnicities) with at least one disabled and/or chronically ill child under 18 years (benefit receipt according to § 37 of Germany’s Social Security Code V and/or level of care > 1), and is limited to the main adult caregivers of the child. The families from the intervention group are recruited via the care service ‘nestwärme gGmbH’ and its network partners in three metropolitan areas of Germany (Trier, Saarbrucken and Munich). The families for the control group are recruited via the umbrella organization ‘Kindernetzwerk e.V.’, which also has regional associations in these regions. In contrast to the control group, which is supported by standard care, the intervention group receives an FGP that carries out a structured assessment in the family and accompanies the family throughout the intervention period. Recruitment for the baseline data collection already started in the intervention areas in January 2022. Control group participants were recruited throughout Germany, with 102 families consenting to take part in the study until the end of September 2022.