Between ten and twenty percent of people with DS are thought to pass away before 10 years of age. The International Dravet Syndrome Epilepsy Action League (IDEA League) conducted a study in which they concluded that 31 of 833 DS patients passed away within 10 years.
The IDEA League's study revealed a mortality rate of approximately 31 deaths among 833 patients diagnosed with Dravet Syndrome within a ten-year period.