Lupus and Myositis Support

First of all before I even allow you to read this section, never freak out when you see the symptoms of any illness, you may not have all of them in your journey with the disease. Every person is different and handles things different. And just remember that these diseases are very rare and each website will differ in information.

In not only these diseases but any take care of yourself, avoid stress if possible, get plenty of rest, avoid smoking or unhealthy eating habits. But with these diseases you need to avoid too much sun, when you are outside wear sunscreen. Get moderate exercise to loosen up joints and muscles. Alot of times Physical Therapy is suggested.

Learn to listen to what your body tells you, it knows when you have over done yourself. Don't push your body into what it doesn't feel it can do. But first and most importantly don't give up. We were given this disease in life to make us stronger people. Fight it and help others like you...The best medicine in the world is LAUGHTER and just remember we are all strong, even when we feel our weakest... Diseases as fallowed

*Butterfly Rash*- A reddish or purplish rash going over the bridge of your nose and onto your cheeks.

*Rhynaud's Phenomenon* Rash that changes color when in the cold- may turn white, blue or purplish

Lupus Foundation of America, Inc.
National Office
2000 L Street, N.W., Suite 710
Washington, DC 20036
Phone: 202-349-1155 (8:30 a.m. - 5 p.m. EST, Monday - Friday)
Fax: 202-349-1156
1-800-558-0121 (Information request line)
1-800-682-7990 (Para información en Español)
Contact your local LFA chapter.

American Autoimmune Related Diseases Association, Inc.
22100 Gratiot Avenue
Eastpointe, MI 48021-2227
Tel: (586)776-3900
Fax: (586)776-3903
Tel: (800)598-4668
Internet: http://www.aarda.org/

Arthritis Foundation
1330 West Peachtree Street
Atlanta, GA 30309
Tel: 404-872-7100
Fax: 404-872-0457
Tel: 800-568-4045
Internet: http://www.arthritis.org

Muscular Dystrophy Association
3300 E. Sunrise Dr
Tucson, AZ 85718
Tel: 520-529-2000
Fax: 520-529-5300
Tel: 800-344-4863
Internet: http://www.mdausa.org

NIH/National Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse
1 AMS Circle
Bethesda, MD 20892-3675
Tel: 301-495-4484
Fax: 301-718-6366
Tel: 877-226-4267
TDD: 301-565-2966
Internet: http://www.niams.nih.gov/Health_Info

Myositis Association
1233 20th Street NW
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