Friends fundraise to make five-year-old's dream come true

By Sally Gyte â¢ Reporter and Producer
10:14pm Sep 25, 2018 Harrison Williams is a cheeky five-year-old whose life is anything but typical.

When Harrison was 16 months old, he was diagnosed with Duchenne Muscular Dystrophy, a rare condition that affects one in 3500 boys and slowly robs them of their ability to walk, use their muscles, lungs and heart.

Harrison's mum Linda said his condition affects their entire lives.

"It's hard on us, it affects every aspect of our lives, it affects where we go, what we do, our finances," Ms Williams said.

"It affects our ability to access the community. We're at appointments all the time, at least two a week."

Harrison was diagnosed with a rare condition at 16 months old. (9NEWS)
Harrison's mum Linda. (9NEWS)

The life expectancy for someone with Harrison’s condition is just late teens to early 20s. He may completely lose his ability to walk in less than two years, which makes this Helensvale prep student's dream even more urgent. Harrison wants to go to Disneyland.

"We're not in a position to do this ourselves. We have a power wheelchair we've got to save up for and a new van for that power wheelchair," Ms Williams said.

So a group of local Gold Coast mothers have come together to organise a Family Fun Day to make Harrison's dream a reality.

"Harrison only has potentially 12 to 18 months left of good solid walking until he's permanently in a wheelchair, so these ladies and the Helensvale community coming up with this great plan is just making a wish come true," Ms Williams said.

Her friends say the family totally deserve a helping hand.

Harrison with his friends. (9NEWS)

“They’re just a warm and loving family and you wouldn’t even know, because they don’t shout it from the rooftops, that they were struggling or anything,” friend Claire Parziani said.

“It would be really great for as many people to come along and support in some kind of way would make the world of difference to this beautiful family."

The Voice star Chang Po Ching will perform as one of many attractions.

The fundraising event will be held on October 20 at the Helensvale Community Centre.
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