 ብዙውን ጊዜ በዚህ በሽታ የተያዙ ሰዎች ስለበሽታው ምንነትና ስለምልክቶቹ ባለማወቃቸው ምክንያት ህክምናም ሳያገኙ ህይወታቸው አደጋ ላይ ሲወድቅ ይስተዋላል።
Often patients with these disorders are mismanaged in the health care system because of our lack of understanding related to the origin and symptoms of the disorders.