On 11th July, our Patient Group Engagement Manager, Libbie, ran a webinar entitled ‘Growing your patient community: identifying patients and groups online’. The webinar began by looking at rare disease specific platforms and mainstream media to signpost to your rare disease organisation online, before moving onto regulatory and ethical considerations.

The webinar offered a whistle-stop tour of ways in which burgeoning rare disease organisations can establish an online presence.

In order to ensure that no one missed out, we recorded the webinar and it can be watched/re-watched here!