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Feb 22, 2012 · Looking for info or someone with transverse myelitis in Brain & Nervous System

March 2011 my husband woke up on a week end suddenly not being able to move his legs, lost the ability to walk, dont have control of his bladder and bowel movement problem. He was rushed to er and after extensive tests the diagnosis was transverse myelitis. Up until that day, he was a perfectly healthy person because he did not have any other underlying medical condition and all tests came back negative, it was categorized as idiopathic. He stayed at the hospital for 12 days, was given steroid, pain meds and everything else to keep him stable. He was later discharge to a rehab where he spend a month of daily theraphy and meds. By the time he went home, he was still under the care of in home therapist with continous meds to take everyday. As we are getting close to a year anniversary, although, there’s a slight improvement, he still is in wheel chair and not able to walk. Today, we just came back from his doctor’s appt which it gets more frustrating when it seems like there is nothing else that doctors can do..while I understand that this seems like a puzzle but I also wonder why we can’t seem to get precise information as to how this condition is treated..Is TM really that uncommon?..I would appreciate it very much to hear from anyone who suffers or care for someone with TM…thank you….