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We've noticed a few very small changes in our daughter since starting the re-feeding....

Her feet no longer feel cold in bed - warm up very quickly

Once re-feeding started there was definitely an 'odour' lets say due to lots of gases escaping....pretty much constantly!   Probably her gut bacteria responding to food or not enough enzymes (due to prior restriction) and bacteria fermenting any undigested food e.g. lactose.  Anyway, we definitely aren't experiencing that anymore so hopefully she is producing more digestive enzymes.

Nights are also a bit calmer.

We still have anxiety over food e.g. rocking, tic behaviour etc and she still doesn't want to get better.  We couldn't go to CAMHs last week due to an appointment change so her next weigh in is this week after two weeks not being weighed.   Hoping for an increase (we haven't had one for three weeks - but she hasn't lost) but not looking forward to the resulting fall out if she has.

Her behaviour is now more apathetic than angry.   

It does sound better. The physical change in her feet is very positive!! Glad to hear this report

Hi Joanne34,

It does sound positive that your daughter is able to regulate her body temperature better. Just a word of warning though. Once we were a bit into refeeding, my son started sweating at night, often needing to change pjs and bedclothes daily. This was a symptom of hypermetabolism and signalled a period where his body needed even more calories. Hypermetabolism is very common but does not happen to everyone so it might not be the case for your daughter. Just thought I'd mention it as it may be a reason why she has not gained weight and, indeed, might be losing weight on the same amount of food. Forewarned is forearmed!

Warm wishes,

