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A new chapter of Lisa Anita Wegner's storytelling.

Filmmaker Performance Artist

Tag Archives: spoons

I haven’t written much lately, mostly because I’ve been in an Ehlers-Danlos Sydrome flare up that is using all my physical emotional and spiritual energy for the basics of living. The spoon theory is that folx with certain illness have a finite amount of spoonfuls of energy in a day. I feel like right now I might have ten spoonfuls in a day. One is used for getting up, three to shower, two to dress and two preparing a beverage. Then I have two left for the day. And that is a hard boundary. There are no reserves at all.  Most days that means forfeiting the shower or the fresh clothes so I can type some information or do a few minutes of creative work. Or if I am able to eat solid food, to prepare some cereal or toast. My executive functioning is very low so I can’t execute things with any steps. I get lost in the steps and often get overwhelmed which leads to system panic or overload which includes being unable to stand with incredible nausea. This state of being is so challenging: I am often struggling for breath, my large muscles will start to spasm, my throat seizes up and then I can’t quite remember who I am or what I am doing.   I basically sit or lie and wait for friends to come in and help out. Luckily I can still make stuff. Gifs instead of short films, or photos instead of videos.


I started teaching my Performance Art Salon via video conferencing and shooting from the floor. Anything to keep creative work flowing with the very limited amount of bandwidth available. I have been able to leave the house about twice a month with the help of a buddy.  I look forward to this changing soon.


This flare up will flare down and I will have more spoons and energy available. I just wanted to say there is a Spoonie at the Haus of Dada.



Lisa is pictured posing with bracing, compression and other items that help in a flare-up.


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