

Wednesday, April 8, 2009

Hard Day




Time.  We just need some time.


Caleb T Ricks said...

I'm sorry that it is still difficult. I hope that she continues to get better and not go backwards. A plan B for the girls isn't a bad idea.

Cammie Heflin said...

I wondered the same thing with Addysen, she will get off of O2!!

Jack said...

I have secondary PH caused by COPD. When you have secondary PH both problems should be treated. Often treating the cause will help the PH.
I am on oxygen for 15 hours a day.Not because I need it to breath but because its part of the treatment. It takes the pressure off the heart which the heart is under because of the PH and does help to keep the oxygen levels above 90 which is important.
The oxygen is a nuisance but as I look on it its a life saver so its a thing you tend to grow to tolerate.
Your daughter will stay on it for as long as she has PH perhaps for not as long as she is now but she will continue3 to need it a large proportion of the time.
There`s lots of research going on about PH now so there is a lot of hope that a cure will be found before long.

My name is Sarah said...

Hi Shelly, This is Joyce. I just sent you an email that will give you a completly different perspective than Jack here. I will summarize for others who might be reading this since his post is here: We said no to the oxygen when Sarah was about two. We did not want her tethered to a tank for the rest of her life. She is almost 20 now and has had a very active life style alongside her peers!! So there are many options and differing treatments. As Bella grows, things will change and you will determine what is best for her and your family. Hang in there. Our prayers continue to be with you.