Pseudotumor Cerebri
"Finally diagnosed with Idiopathic Intracranial Hypertension without Papilledema after nearly 4 years of messing around with doctors who didn&#039;t believe anything was wrong, because my situation doesn&#039;t involve the optic disk swelling. Was started on Diamox 500mg a day...after 14 days severe stomach pain, I couldn&#039;t even drink water. Neurologist told me to stop taking it. The tingling, which is everywhere, turns to sheer pain if your out in the wind. By day 10 of taking the medicine, my lips started to purse on their own. My kids laughed because I had &quot;duck face&quot; for several days, even after stopping the med. Now I&#039;m back on it, 125mg/day, same side effects. Sucks. Did not help my symptoms the first time, and hasn&#039;t yet."