Systemic Lupus Erythematosus
"Its been a year and half on hydroxychloroquine at the high dose at first, which gave me brown urine, headache, and no appetite. Doc cut the dose in half, and I was okay, except for irritated tummy. I asked if I could again cut dose in half, which worked out to like 100mg a day. I felt like my old self, but doc thought too low dose. I turned down prednisone all together, and waited out the hydroxychloroquine. I saw the rheumatology doc the other day and took a list of concerns, he said not related to lupus...(burning skin in private area, tummy issues, brain fog, dry mouth at the front, and a few others). I had culture on urine and nothing...but bilirubin in urine and trace ketones too, so gonna double check that out. Rheumatology thinks I should go off this."