Chronic Inflammatory Demyelinating Polyradiculoneuropathy
"I was diagnosed in 2007 with Lewis-Sumner disorder a branch of Chronic Inflammatory Demyelination Polyradiculoneuropathy. I received a week of loaded doses of Gammagard then maintenance dose of 100 g and has been at 90 g for a few years now. This medicine is a great help for the atrophy in my legs but I do get side effects...moderate to severe back and muscle pain, cramping in my upper front main thigh muscle, foot and toes. Also a lot of hair loss and women should not get IVIG infusion when on their menstrual cycle. It causes more clots and a lot of increased flow than normally happens. Double up on your monthly femine products and be prepared to change them every 30 minutes. I also experience fatigue and frequent urination and headaches. Drink lots of water! I take Excedrine migraine."