By Daniel Mills An 18-year-old Gold Coast girl has won her bid to have a $680,000-a-year drug subsidised so that she can receive ongoing medical treatments to keep her alive. Bianca Scott, who spent her recent 18th birthday wishing to stay alive, will finally have access to her first government-funded dose of Soliris, which will save her family more than $24,000 a fortnight and help her fight a very rare immune disease which attacks her internal organs. Ms Scott is suffering the life-threatening blood disease called atypical haemolytic uraemic syndrome, or aHUS which can result in blood clots and can destroy internal organs. Bianca has had 11 doses of Soliris since February, costing her family about $250,000, but now she will be given the drug for less after a joint State and Federal Government-funding agreement was reached.
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Bianca Scott will receive subsidised life-saving drug treatment
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She suffers from a rare immune condition called aHUS
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Soliris treats the condition but at full price costs $24,000 a fortnight
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The 18-year-old's mother spent up to $250,000 treating her daughter
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Her case has opened up debate to subsidise the drug long term
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