By James Nye PUBLISHED: 13:27 EST, 30 November 2013 | UPDATED: 14:19 EST, 30 November 2013 A New York couple claim their desperately ill newborn son was denied a heart transplant by hospital because he suffers a mental disability. Autumn Chenkus, 32, and her boyfriend, Charlie Higgs, allege that New York-Presbyterian Hospital in Manhattan refused to put their child, Maverick, onto a transplant list because he had a rare genetic defect. Refusing to believe that their sons Coffin-Siris syndrome was a valid reason not to put him on the transplant list, Autumn and Charlie embarked on a month-long battle to get Maverick treatment - culminating in a fateful trip to Boston in June.
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Maverick Higgs was born in September 2012 with a heart defect
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Doctors at New York-Presbyterian Hospital worked to place him on the transplant list
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Two days after he was, doctors removed him citing a previously undiagnosed genetic condition
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They told mom and dad Autumn and Charlie to take him home to die
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Undeterred, they carried on researching his condition and got him transferred to Boston Children's Hosptial
According to a recent study, babies with @placeholder sit, walk, and speak later than other children on average.