(Parenting.com) -- What does being a mother mean when your baby is dying? How do you parent a child with no future? These questions needle the reader throughout Emily Rapp's moving and beautiful new book, "The Still Point of the Turning World." In January of 2011, when her son Ronan was just nine months old, Rapp learned he was dying from Tay-Sachs, a ruthless and heartbreaking disease with no cure. Ronan was given no more than three years to live. He had developed normally for six months until he simply stopped. He would very gradually unravel, fading away from her piece by piece, until his death in February of this year.
@highlight
Writer Emily Rapp's son was diagnosed with Tay-Sachs disease at 9 months old
@highlight
As her son lived out his short life, Rapp grieved through writing
@highlight
Rapp delighted in moments of joy with her son and learned profound lessons
And now, @placeholder lives on in this touching book -- as agonizing to read as it is imbued with hope and light.