By Emma Innes PUBLISHED: 11:56 EST, 22 October 2013 | UPDATED: 02:22 EST, 23 October 2013 A little girl can never have a cuddle from her mother because a rare condition means she breaks out in painful sores at the slightest touch. Alisa Doanvan, five, is at risk of a potentially deadly infection because of the disorder but still attends school despite not being able to join in many playground games. Just one cuddle from her mother, Lee, 33, can leave Alisa with painful sores and walking barefoot can see her skin flare up. Alisa Doanvan (pictured with her parents, Joe and Lee) has a rare skin condition which means her skin blisters and develops painful sores at the slightest touch
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Alisa Doanvan has Herlitz junctional epidermolysis bullosa which causes her skin to break out in painful sores when it is touched
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She is at risk of a potentially deadly infection because of the sores
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Her body is covered in scabs and sores and she cannot play with her friends at school for fear she will do more damage to her fragile skin
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Her toes are fusing together because they have blistered and then re-healed so many times - she will need surgery to separate them
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Her mouth also blisters so she has to stick to a soft food diet
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Her parents spend an hour and a half a day changing her bandages
She said: ‘@placeholder will try and do as much as she can but easy movements are often painful for Alisa.