{"content":[{"text":"Contents","bbox":{"left":0.095142,"top":0.064495,"width":0.131072,"height":0.029439999999999994}},{"text":"Introduction 4 \n Summary of findings 5 \n Background 6 \n Who are SOFT UK? 6 \n What are Trisomy syndromes? (information adapted from SOFT UK website) 6 \n Why was this research needed? 8 \n Methods of study 9 \n Aims 9 \n Data collection 9 \n Analysis 9 \n Research questions 10 \n Findings 11 \n Participants 11 \n What services do families currently access through SOFT UK 11 \n What are the benefits of this support? 12 \n Theme 1: Sharing of experiences 12 \n Theme 2: Social and emotional support 12 \n Theme 3: Availability of information 13 \n Theme 4: A balanced picture of what to expect 13 \n Which other sources of support are there for families? 14 \n What would families like medical professionals to know? 15 \n Theme 1: Clear, up-to-date information readily available via the NHS 15 \n Theme 2: Positive attitudes towards their children 15 \n Theme 3: Sensitivity 16 \n What would families like SOFT UK to provide (& continue providing) in the future? 17 \n Conclusions 19","bbox":{"left":0.095142,"top":0.111412,"width":0.7979100000000001,"height":0.6895760000000001}},{"text":"2","bbox":{"left":0.488292,"top":0.905715,"width":0.011207000000000022,"height":0.019584000000000046}}],"images_bbox":[],"images_bbox_not_text_overlap":[]}