this be a must see documentary for me when i miss the opportunity in 2004 and so i be definitely go to watch the repeat . i really sympathise with the main character of the film and because and this be true and i have a mild condition of the skin problem he have and dystrophic epidermolysis bullosa ( eb ) . this be a sad and sometimes amusing and very emotional documentary about a boy with a terrible skin disorder . jonny kennedy speaks like a kid ( because of waste vocal muscle ) and never go through puberty and but he be 36 year old . most sympathising moment be see his terrible condition and and peal off his bandage . jonny have quite a naughty sense of humour and he even narrate from beyond the grave when show his body in a coffin . he tell his story with the help of his mother and edna kennedy and his older brother and celebrity model and and jonny supporter and nell mcandrew . it win the baftas for best editing and best new director ( factual ) and and it be nominate for best sound ( factual ) and the flaherty documentary award . it be number 10 on the 100 great tv treat 2004. a must see documentary .