i have a two year old son who suffer from the same condition a jonny kennedy . i never get the chance to meet him but i have never hear anybody say a bad word about him . i hope he know how much the making of this programme have help his fellow sufferer by raise awareness of this terrible condition . this man have touch people in a way that a million charity leaflet could not . i believe that this should be compulsory view in school . i also agree with other comment what have i get to moan about . he take everything that life could throw at him and still manage to retain a sense of humour . god bless . i couldn not watch the part that show his dressing be change . i have enough trouble with my son .